Ask the Patient Leaders: The Overlooked Aspects of PsA...You may be familiar with the term “invisible illness.” It’s a common term used to describe chronic conditions that are not outwardly visible to family, friends, partners, and even healthcare...Reactions0reactionsComments3 comments
Brain Fog - What I Need Others Around Me to Know...I woke up struggling. A long night of storms made for little sleep and lots of pain. Thunderstorms are my worst psoriatic arthritis (PsA) weather flare. I wanted to stay...Reactions0reactionsComments5 comments
My PSA Journey....I started getting symptoms around 19, severe joint pain and swelling in my fingers, wrists, knees, and feet. I had psoriasis that covered the backs of my knees that would...Reactions0reactionsComments2 comments
How Can We Sleep Better When We Live With Psoriatic Arthritis?...A good night's sleep is a gift when you live with psoriatic arthritis (PsA). It's also a gift that few and far between. Between stiffness, intense pain, swelling and general...Reactions0reactionsComments1 comments
Ask the Patient Leaders: Why We Share Our PsA Stories...On paper, it would make sense for a chronic pain story to begin with a diagnosis and go from there. For those with psoriatic arthritis (PsA), that’s not the case...Reactions0reactionsComments0 comments
Foot growth...I am curious if anybody else has had unusual foot growth. I’m not talking about toes swelling up or any temporary symptoms. I used to wear a size 11 1/2...Reactions0reactionsComments1 repliesSymptoms
Has anyone had to give up work because of their condition and did they get UK benefits or early pension to live on?...This is being asked by a community member. This person is 54 and is now struggling to stay on top of their job as manager. They think it is necessary...Reactions0reactionsComments1 replies
Has anyone been diagnosed with PsA before psoriasis?...Hi! Here's a question from our community member: "Has anyone been diagnosed with PsA prior to showing symptoms of psoriasis or psoriasis of the nails?" Do you have any experience...Reactions0reactionsComments133 repliesComorbiditiesDiagnosis
May 24, 2023: Join Our First Instagram Live with Joni and Aimee! ...On Wednesday, May 24th at 5 PM ET, please join us on @psoriaticarthritis_hu (https://www.instagram.com/psoriaticarthritis_hu/) and @psoriasis_hu (https://www.instagram.com/psoriasis_hu/) for our first Instagram Live during Psoriatic Arthritis Awareness Month. Featuring 2 of...Reactions0reactionsComments3 repliesAwareness
Has anyone ever been misdiagnosed because treatment just isn’t working?...Hi Everyone! I took be about 6 years to get diagnosed and I have been on treatment for 2 years. I started out with Sulfazalazine and found out I was...Reactions0reactionsComments2 replies
Do you use any home treatments for psoriasis on private parts?...Hi! Asking a question from a community member who is wondering: "What home treatment if you get psoriasis on your private parts" If you have anything that's worked for you...Reactions0reactionsComments0 repliesIntimacy & RelationshipsTreatment
Lichen Sclerosus...A community member asks: "Is it common to have Lichen sclerosis with psoriatic arthritis?" Does anyone also have Lichen sclerosis with psoriatic arthritis? Or know someone who does? Please share...Reactions0reactionsComments2 repliesComorbidities
How long did it take for you to get your disease under control after symptoms began?...Hi! I am asking on behalf of another community member: "How long did it take for you to get your disease under control after symptoms began?" I'm sure this may...Reactions0reactionsComments5 replies
Intimacy Tips With Painful Joints and Lesions ...Hello! A community member asks: "Erm, how to be “intimate”. With painful joints and lesions in private areas, it’s just something that I’ve put off the table." Does anyone have...Reactions0reactionsComments1 repliesIntimacy & RelationshipsTips & Advice
Does anyone else experience migraines or painful head pressure?...Hi! I am asking this question for a community member, who writes: "I have PsA and most of what affects me are what seem like neurological issues or what they...Reactions0reactionsComments15 repliesSymptoms
Is It Possible To Apply and Get Accepted For Disability?...This is being asked for a community member. They state that they are an RN on immunosuppressants, currently not working due to PsA illness and chronic pain. Can you answer...Reactions0reactionsComments3 replies
FeaturedHow to overcome the disappointment in myself for my weight gain following not being able to keep fit?...This is being asked on behalf of a community member. They state they gained a lot of weight over the last year, and struggling to shift it due to fear...Reactions0reactionsComments34 replies
Active 3 days agoDoes anyone have anything they do to relieve enthesitis?...This question is being asked for a community member. They state that they have it in their hips, forearms and ankles. It effects their mobility greatly and is so uncomfortable...Reactions0reactionsComments24 repliesTips & Advice
How Many Had/Have Next To Nothing With Regards To Skin Involvement?...This is being asked by a Community Member. They state that they have tiny patches (less than 5) on my body/limbs, a bit on the sides of my feet....does your...Reactions0reactionsComments4 replies
What treatments to start with?...This is being asked for a community member. The member says the options sound horrible with potential side effects. What would be your recommendation? Vickie W., Team Member...Reactions0reactionsComments0 repliesTreatmentTips & Advice
