Insurance companies are given entirely too much power over our treatment.
If your insurance won't cover the cost of the medication that works for you, try reaching out to the pharmaceutical company - most, if not all, have plans in place for lower cost or no cost assistance with the medications not covered by insurance. Your doctor should be able to assist with that.
As to nobody understanding - that's exactly what this community is here for. We all get it because we're all living it too. All the bizarre symptoms, the inconsistency of symptoms and treatments, the modifications we all have to make, and the stress/frustration of it. Don't give up. You're more than this disease.