How do you go about getting disability without losing everything?
I have been working as a nurse for 37 years. Now the fatigue, pain, brain fog, and all around difficulties with this disease make it miserable to continue. I need to quit working because I can't do it, but then would lose my insurance. I need help please.
Welcome to our community, I see you recently joined, and we are so happy to have you here. What an incredible job you do, Helping so many people every day. How are you treating your PSA at the moment, if I may ask? Would you be able to file for disability? - 🐝Clair, ( Team Member)
I don't know if I can work any longer full time. Need insurance. Not sure how to do this.I understand that, I can imagine that it is a very physically taxing job. I am sharing an article with you about choosing insurance that I hope will help you. https://psoriatic-arthritis.com/living/insurance-bingo and another about disability. https://psoriatic-arthritis.com/living/disability-application I hope that these will shed some light for you. How are you doing today?
Warm Hugs
-Clair, ( Team Member)
If your plan is to seek social security disability, speak first with an attorney who specializes in handling these cases.
So it took a few days to fill out SSDI forms but my husband was able to get it. He had a very physical job and it put much to much pressure on joints. The issue becomes the insurance. If you have a spouse who can cover you, that is ideal.
Unfortunately, I had to quit working last August. It came as a bit of a surprise, I had planned on being able to work for at least another few years. However, I ended up getting a new supervisor and that didn't work out well; the stress was causing me so much pain that I had no choice. I am technically still employed (I took FMLA leave, which exhausts after 12 weeks, but they haven't fired me as I've been working with HR to try to procure accommodations - and they're very slow).
So I still have my health insurance, but since my paid time off ran out in October, I owe them now for all of the premiums between then and now, even though I've had zero income. Still, better than not having any insurance. I was also able to get approved for Medicaid, although they won't give us any other assistance that I'd hoped for. Depends on your household's financial stats, though.
Also, I wanted to mention this; I work for a hospital as well, and I found out in November that the company pays for short-term and long-term disability insurance for employees. So I filed for the long term, ours is supposed to pay half of your salary for 1 year. I'm waiting for the claim to be processed, fingers crossed. Wish I'd known about that sooner, life has been really tough since I wasn't able to plan any of this. Do all of the advanced planning you can before you turn in your notice! Good luck to you, sending good vibes and good mojo 😀
First I just wanted too thank you so much for your service too your patience and too your country. Before I had a terrible psoriasis break out a year and a half ago , I had a failed back surgery and two infections ( surgical) which required surgery and self infusion with antibiotics. About 9 mo after my break out which was controlled by Skyrizzi.. I was so happy clear skin no more itchy ness and lessions. Than my fingers started hurting and itch peel , than knees, wrist and lower back hurt. Than wrap around rib pain which in it's self is horrible..
The good thing is I was able to find a great Rheumatoid doctor.. I was able too get SSI but it took two tries. After speaking too others it seems that is the norm. They decline you first and hope you go away.
But as you know how can you work constantly , you never know when you may get a flare up it could be a rash but more so its the pain and the lack of energy that kept me from working.
I hope especially since you have helped so many others over the years that you get what you need.. prayers too you..
I am new too all of this so sorry if I got off track , I hope you did not have too suffer to long before you got a diagnosis. I blamed my back and infection . So it too a while for me too know something more was going on.
If you don't mind what meds are you taking ? The Skyrizzi was remarkable for the skin but does not do anything for the pain nor does the Motrin.
They want to try Rinvoq ? Do you or anyone have any success with this drug ?
Well good luck and don't let up on pushing SSDI to do the right thing ..
Feel well ,
Rick
Hi
, thank you for chiming in here. I'm sorry to read about everything you've been through with your psoriatic disease. PsA has greatly affected my ability to work too. I'm really glad that you were able to get SSI, even though, of course, we all wish that it wasn't necessary.
I just wanted to jump in here regarding the Rinvoq - we do have a few community members on this medication. I hope you'll get some replies here, but if you'd like to (and if you have the energy), it might be worth starting a new forum discussion on this topic: https://psoriatic-arthritis.com/create-thread That should increase the visibility of your question. Hoping you can find something that will bring you relief from both the psoriasis and psoriatic arthritis. Please keep us updated if you can! Warmest wishes, -Catherine, Community Moderator
