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How do you deal with immense fatigue?

I've been dealing with the worst fatigue lately, I wake up and then about 2 hours later I have the need to just pass out for the next 2-3 hours, and then I become so much more alive once 9pm hits. it's been wild and so hard to deal with, I feel like I'm tired nearly every second until my body decides that midnight is the time to party.

has anyone else dealt with this? if so, I'm SO curious to know how you deal with such immense fatigue! - Abigail, Team Member

  1. , the fatigue is so rough!! So sorry to read that you're struggling with this 😢 I suffered with fatigue very badly for quite a few years - I spent probably 23 hours a day in bed for around 6-7 years. It's awful. The only thing that truly helped me at the time was resting, and I mean truly resting - body and mind. Fortunately, the fatigue has greatly improved since I started on medication for the psoriatic arthritis. Have you been able to chat with your doctor about how much this is affecting you? They might want to check that nothing else is going on (often it is "just" the PsA but it's always a good idea to make sure). I hope others will chime in with some more practical advice, and I do hope that this eases up for you very soon. Sending love and strength 💖 -Catherine, Community Moderator

    1. This is my main issue! I could sleep 18-20yrs some days. Adderall has been a god send! I spoke with my doc & agreed to monitor me so I don’t get addicted, keep low dose early morning & then again at noon. For me, my QoL is soooooo much better! I’m the type that will usually push thru (most days anyways) pain but the fatigue was ruining my life. This helps! Just be careful and know the pros vs cons & def go over them with your doc if you go this route.

      1. oh that sleep and fatigue sound really challenging! I hope that you're able to check in with your GP and address it. If you're comfortable, please let us know how it goes. -- Warmly, Christine (Team Member)

      2. Wow, that sounds amazing. That's exactly what I'm looking for. Maybe I should as my rheum that too.

    2. I do breathing exercises, that's what helps me through it all.

      1. , I really want to get into a routine with breathing exercises but I struggle with remembering to do them, especially if I'm worn out or stressed (which is perhaps when they would be most helpful!). Do you mind sharing more about the breathing exercises that you do, and how often you do them? I'm glad they help you cope. The fatigue is such a tough one to deal with. Hugs! -Catherine, Community Moderator

    3. Rest

      1. it's great to be able to rest when that immense fatigue hits! Thanks for joining the conversation here. -- Warmly, Christine (Team Member)

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