How Do You Know If You Have A Very High Threshold For Pain?
If disease activity is assessed on how much pain we are in then what happens if we are not in much pain but have high inflammatory markers?
I sometimes wonder how we go day to day with all this pain in our bodies. Just curious is what you all thought about this. We would like to hear from you. Diane (Team Member)
Hi Diane, I have started thinking about my pain in two ways. Or rather I use two 'pain scales'. I always think that this pain is a level 6 on the 'normal people' pain scale, but on my personal pain scale it is usually about a 3. So when a doctor or someone else asks about my pain, I always give them the 'normal people' answer. Just because I know that I tend to disregard my own pain or I am so use to it that it barely even registers.
I hope this helps.Yes, I take pain pills twice a day, but even with that I struggle with it. , I hope the pills are helping some. It's not an easy road to travel, trust me, I know. We are here if you need to chat. Thanks for sharing some great information with us. It is appreciated. Diane (Team Member)
I have been the opposite; pain with normal CRP and Sed Rate. But as for pain threshold, in 2022 I suffered a non displaced fracture of my sacrum, and thought it was just my sacroiliac joint flaring. I had been on high dose prednisone for quite awhile, and developed osteoporosis as a result, and the high intensity long distance running I was doing resulted in stress fractures that worked into a full on fracture. So I can safely say that having this disease has created a very high threshold for pain.
Thanks for being a part of this community. I see things from a whole new perspective from you. I wish I could have one day without pain. I am about ready to take it up a notch. I don't want to be on medication for the rest of my life, but I also don't want to live like this. For the past few years, it was okay, but as I'm getting older (almost 67), it's wearing on me. On my next doctors appointment we will discuss other options. Thank you for sharing. Diane (Team Member) 
yes! The 1-10 pain scale is really not helpful for people living with chronic pain. It seems to be a more useful tool for someone with acute pain. I'm glad to hear that you've been able to still have some of those pain free days. Feeling like Superman is a great analogy! -- Warmly, Christine (Team Member)
