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Does anyone else have a similar issue?

Hi everyone. It’s been a while since I’ve posted on this forum but I hope someone has some helpful thoughts/ideas. I was diagnosed with PsA about 2 years ago, however I suspect I’ve had it much longer. I have IBS along with it which I understand is fairly common. However, now it appears my bladder may be involved - possibly interstitial cystitis although I don’t have an official diagnosis yet. This is just the gift that keeps on giving!

So for anyone else who may have a similar diagnosis- what were your symptoms and what have you found that helps? Thank you - this is a great forum!

  1. Thank you so much for sharing so candidly with us. I have not had a diagnosis, but I have been getting chronic cystitis for years. It is honestly one of the hardest things to deal with, it is so uncomfortable and sore. Did your doctor give you any ideas on how to treat this from now on?

    - Clair ( Team Member)

    1. Hi , nice to see your name pop up here again 😊 Sorry to hear about these struggles though. I used to be in touch with someone who had interstitial cystitis and it sounds horribly painful. I'm going to tag here in case he wants to chime in (Dewi, I hope you don't mind me tagging you here - I know you don't have interstitial cystitis but thought your experiences may be relevant). I was also able to find an old forum discussion which mentions bladder problems (it's a rather short discussion but may still be of interest): https://psoriatic-arthritis.com/forums/gastric-antral-vascular-ectasia-diagnosis I hope you'll get more responses here, Maia. Please keep us updated on how you're doing if you can. Warmly, -Catherine, Community Moderator




      1. Hi Maia, Dewi (Stuart) here in Perth Australia. Cathy is correct my psoriasis in not only in my urethra but from time to time manifests in my bladder. Managing urine is a new challenge. I'm on MTX (methotrexate) plus to date five biologics to no avail in terms of inconvenience & pain management. My Dr has me on slow release synthetic opioids (250mg) with an adjunct fast release (40mg). My best method of sharp pain management is Ural, a alkaline 'powder' added to my drinks. noting it has a down side - stones.
        That is a quick synopsis, pls let me know if you require further info based on my experiences.

        1. Hi Cathy, the opioid based medication certainly provides me relief, however I’m also aware of the risks. My daughter has a very mild form of Pso & I hope it stays that way. I can understand your holiday selection strategy, I would take the same approach.
          Do you follow politics in particular the current finger pointing and bickering?
          Cheers for now Stuart

        2. , I'm glad that the opioids bring you relief, although yes - good to be aware of the risks, as with all treatments. Oh I hope your daughter's psoriasis stays mild as well. My grandad also had psoriasis so that's where mine/my sister's came from. I do follow politics, however I should mention that we have a community rule where conversations on politics must be in the context of PsA (you can find this and our other community rules here: https://health-union.com/community-rules/). We have had a heat warning in place for most of this week so I've been very uncomfortable. Thankfully today feels cooler so far. I imagine it's getting cooler over there now too. How have you been faring this week, Stuart? Warmly, -Catherine, Community Moderator

      2. Hi . Nice to see you posting again. PsA is definitely the gift that keeps on giving. I found an article that might interest you: https://psoriatic-arthritis.com/forums/side-effects-to-meds. The article talks about interstitial cystitis. I hope this helps. When will you know if this is an issue you will have to deal with? Sending gentle hugs. Hoping the best for you. Vickie W., Team Member

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