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Treatment Issues

Humira??

  • By CathyD Moderator

    Hi brandy.plunkett,

    Starting a new medication can feel scary, especially if you add that to the other shock of being recently diagnosed! Please know that we are here to support you through this.

    I don’t have personal experience with Humira but I wanted to let you know about this article we have on it, if you haven’t seen it already: https://psoriatic-arthritis.com/medications/humira-reviews-how-well-it-works-and-side-effects/ I hope this is helpful. Don’t be afraid to ask your doctor or nurse questions too!

    Please keep us updated with how you are doing, and best of luck with the Humira. I hope it brings you relief.

    Best wishes,
    CathyD

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  • By Mothership413

    I was diagnosed with PsA last spring & began Humira November 2016. I haven’t had any side effects at all. After about 8 weeks of Humira, my pain & symptoms did lessen a bit. I am told it will get even better with time. Hope this helps. Good luck!

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  • By Gloriaiperez

    Hi to all!
    My name is Gloria I. Perez. It’s the first time I take part of this forum on PsA.
    My struggles started since I was 17 years old. Pain has been my closest friend since then with no definite diagnosis. I read a lot, do a lot of research too.
    First told I had Fibromyalgia. Then got epidural shots for my back. Nothing seemed to work.
    My skin psoriasis is not so horrible, it is only in one elbow , and both my feet. But my toe nails started changing color and detaching from the bed of the nail. Treated as nail fungus for the past 5 years. Treatments after treatments. Topical medication, laser, even taking out the one of the big toe. Biopsies always came back negative for fungus, but were treated as fungus.
    So I decided to be more pro active and it was when I found out about PsA.
    I finally started seeing a reumathologist listen to me. He first took some x-rays and run a few lab works , and it was then when he diagnosed me with psoriatic arthritis. All these years without proper treatment. My joints in hands, feet , neck, hip, and lower back are all involved.
    Well, he immediately started me on Enbrel last October. After a few months, I was not feeling any better, and had a few infections. He decided to switch me to Humira. For new year insurance issues, I have not started it yet . I am in so much pain lately. Can’t wait to give it a try. Please, keep me posted on Humira as PsA treatment, other patient experiences, options, etc.
    Thank you for any help you can provide.

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    • By CathyD Moderator

      Hi Gloriaiperez,

      Welcome to the community! It’s great to have you here 🙂

      Sorry to read about what you have been through with misdiagnosis, and that diagnosis hasn’t yet brought with it any relief. I hope that you are able to start Humira soon and it makes a difference for you. Please let us know how you get on, and do lean on us anytime you need support – we are here for you.

      – CathyD

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  • By ejbakko

    I have used Enbrel for four years and it worked wonders. Just had to be careful as far as infections go. I tried to go bank on it after my pregnancy and it just wasnt working any more. Rheum switched me to the Humira. Be careful on this stuff! I was only on it a month or two, and it brought down my immune system so far I ended up with pneumonia. I decided not to continue with it after that. They then switched me to the new oral Otezla. It has worked just as well, but does not kill your immune system! Check it out!

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  • By Nan54

    I have been on Humira for about 20 months now, I have Psoriasis & PsA. It helped my skin a lot, but it took some time. My pain wasn’t too bas, but this winter I have been in horrible pain. Can’t get out of this flare, if that is what it is. Tendonitis & joint pain so bad. I have gotten a couple sinus/ bronchial infecs., had one this winter for weeks & I am wondering if that is what put me in the flare. Dr.’s appt. next Tues., we’ll see if they can help. I need anti-inflammatories or something. I have had fibro for 25 years, but now I am wondering if it wasn’t PsA?

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  • By Dennie820

    I started out with Methotrexate but it wasn’t working on it’s own. My dr added Humira. I was on it for close to a year but it appeared to stop working for me. I had no side effects but I will say I found the injection itself very painful and left scars. I don’t mean to scare you or anything, it’s just my experience.

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  • By Jdubb187

    Love the stuff!!!!! Ive been on sulfasalizine (max dose) & plaquenil for over a year….without any improvement (it can be 6mo. Or so before results with the sulfa) but we decided to add humira into the mix and what a difference it has made on my life!

    Im nowhere near “normal” (not that i would be, otherwise) but i feel incredible. This is the closest ive felt like being a healthy human in Forever! Most days i can be a mom again and do housework & homework. I still have to rest if i overdo it, but its definately an improvement over where i was before treatment.

    Best advice is: give it time, REST when you need it & STAY STRONG! its a long battle, but you are not alone!

    Good luck!!!

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