What does your PsA most often get in the way of?
Psoriatic arthritis can affect many aspects of life – work, relationships, sleep, and more. In your experiences, what does PsA most get in the way of? Has this answer changed over time? Please share your perspective!
I find sleeping and exercising is the hardest for me. I’ve had lower back pain for over three decades so I’m not sure if it’s arthritis but in my hands I definitely know it is and that prevents me from putting in a decent amount of time exercising. Sleeping is a hit or miss because of the lower back pain. Making it 3 or 4 hours a night uninterrupted is a joyous occasion for me.
Yes, that's me. I don't do the gummies because I get freaked out over any cannabis. Since I've been on Humira, my hands have been much better, however my back is the same. Will always be the same. I try to do water therapy and that seems to help a bit. It's just what it is now. Good luck. I was extremely hesitant to try the edibles as well. I understand completely! Honestly, even as an experimenting teenager, I hated the stuff. I only ever puked ad went right to sleep, never enjoyed it as so many people claim to. But by using a small
amount, and going to sleep, I’ve managed to avoid the nausea. I’m glad you’ve gotten relief from the Humira. I have as well, but now my insurance has made
Me switch to Hyrimoz (I probably butchered the spelling, but it’s biosimilar to Humira). If you ever find anything that helps more with your back, please let me know. In the meantime, water therapy, heating pads and finding shortcuts to do stuff so my back is not used as much are my waking periods relief. Good luck!🍀
Planning anything beyond today. I never know how much pain I'll have, how tired I may be or how bad the brain fog is that day.
I am sure the unpredictability of PsA can awfully frustrating for you, @Kimw. Are your friends and family pretty supportive? Best of all wishes! - Lori (Team Member)
we have realised that we will plan to do stuff but everyone knows that day by day and morn or afternoon things may change.
My friends and family are the reason I keep going. Once I let them help me things got a lot better.
as I deteriorated the first thing to go was my hobbies, the was weekends and trips away. Then it was affecting time with family and meant apart from working i did nothing but work and rest. Now I cannot do work and struggle with the socialising and family time.
It’s meant I need to change the way I think and act in everything I do.I have a home in the mtns with a brook running through ,i have never walked to the end of the property before, walk down wasn't too bad, walking back was another, with my walking stick, I was bed ridden for a week ,pain water all the fun stuff, it's so hard to plan things, my VA caretaker knows Wich is my wife a nurse rn of 30+yrs ,boy did I luck out ,hang in there man I was diagnosed with PsA 11/2020. I had no idea of what was coming. I have a high paying corporate job that I loved and excelled in for 20 years. I was able o juggle work, marriage, parenting, family and friends throughout that time. Now I only have energy to work and take care of my family. I am grateful to be able to do this but I don’t have anything left for myself… rest, hobbies, exercise. It is rough.
