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What does your PsA most often get in the way of?

Psoriatic arthritis can affect many aspects of life – work, relationships, sleep, and more. In your experiences, what does PsA most get in the way of? Has this answer changed over time? Please share your perspective!

  1. I find sleeping and exercising is the hardest for me. I’ve had lower back pain for over three decades so I’m not sure if it’s arthritis but in my hands I definitely know it is and that prevents me from putting in a decent amount of time exercising. Sleeping is a hit or miss because of the lower back pain. Making it 3 or 4 hours a night uninterrupted is a joyous occasion for me.

    1. Hi @Steve. I wish you could get a good night's sleep at least once in a while. Here is an article from one of our advocates with some tips for sleeping with PsA pain: I hope this helps and that you get some relief. Thinking of you! - Lori (Team Member)

  2. Planning anything beyond today. I never know how much pain I'll have, how tired I may be or how bad the brain fog is that day.

    1. I am sure the unpredictability of PsA can awfully frustrating for you, @Kimw. Are your friends and family pretty supportive? Best of all wishes! - Lori (Team Member)

  3. My friends and family are the reason I keep going. Once I let them help me things got a lot better.

    1. as I deteriorated the first thing to go was my hobbies, the was weekends and trips away. Then it was affecting time with family and meant apart from working i did nothing but work and rest. Now I cannot do work and struggle with the socialising and family time.

      It’s meant I need to change the way I think and act in everything I do.

      1. , PsA really does rearrange our lives in ways that I never dreamed.
        My husband and I need to travel for family reasons. Our travel will be planned around my PsA needs for rest and injection dates. It makes me sad.
        I manage to adjust to the "new normals" but it seems that after I adjust, there is another "new normal" around the corner. Jeepers.
        I do what I can to stay positive but some days that positive attitude can be elusive and exhausting so I allow myself to grieve or be angry when I need to.

      2. I have a home in the mtns with a brook running through ,i have never walked to the end of the property before, walk down wasn't too bad, walking back was another, with my walking stick, I was bed ridden for a week ,pain water all the fun stuff, it's so hard to plan things, my VA caretaker knows Wich is my wife a nurse rn of 30+yrs ,boy did I luck out ,hang in there man

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