What does your PsA most often get in the way of?
Psoriatic arthritis can affect many aspects of life – work, relationships, sleep, and more. In your experiences, what does PsA most get in the way of? Has this answer changed over time? Please share your perspective!
I find sleeping and exercising is the hardest for me. I’ve had lower back pain for over three decades so I’m not sure if it’s arthritis but in my hands I definitely know it is and that prevents me from putting in a decent amount of time exercising. Sleeping is a hit or miss because of the lower back pain. Making it 3 or 4 hours a night uninterrupted is a joyous occasion for me.
hi yes I understand if I get 4 hours it's wonderful.your not alone.if only my rheumatologist would be more understanding of my pain and insomnia Hi ,boy I can relate to insomnia I have been dealing with this for 4 years along with RESTLESS LEG SYNDROME I need any advice anyone can give me.thanks
Planning anything beyond today. I never know how much pain I'll have, how tired I may be or how bad the brain fog is that day.
we have realised that we will plan to do stuff but everyone knows that day by day and morn or afternoon things may change. I really cannot count on how I will be in the mornings. It becomes hard when you are a no show at planned appointments. I get hard on myself.
My friends and family are the reason I keep going. Once I let them help me things got a lot better.
as I deteriorated the first thing to go was my hobbies, the was weekends and trips away. Then it was affecting time with family and meant apart from working i did nothing but work and rest. Now I cannot do work and struggle with the socialising and family time.
It’s meant I need to change the way I think and act in everything I do.I was diagnosed with PsA 11/2020. I had no idea of what was coming. I have a high paying corporate job that I loved and excelled in for 20 years. I was able o juggle work, marriage, parenting, family and friends throughout that time. Now I only have energy to work and take care of my family. I am grateful to be able to do this but I don’t have anything left for myself… rest, hobbies, exercise. It is rough. Same for me. I was an airline captain when PsA struck. I could not continue in this field anymore but was lucky my wife had a psychology practice that I could help with in between the flares. I miss my hobbies and meaningful exercise too.
