What does your PsA most often get in the way of?
Psoriatic arthritis can affect many aspects of life – work, relationships, sleep, and more. In your experiences, what does PsA most get in the way of? Has this answer changed over time? Please share your perspective!
I find sleeping and exercising is the hardest for me. I’ve had lower back pain for over three decades so I’m not sure if it’s arthritis but in my hands I definitely know it is and that prevents me from putting in a decent amount of time exercising. Sleeping is a hit or miss because of the lower back pain. Making it 3 or 4 hours a night uninterrupted is a joyous occasion for me.
I have bought two different ones on Amazon and I’m not sure that the dimensions were advertised. Both worked fine. If you live in a big city there may be a medical supply store that has one to try out?
Mine is about 8-10 inches tall and the sloped part is about 12 inches long. It is about 18 inches long on the flat top.
, thank you so much for taking the time to share the dimensions of yours with me. I will look around and see what I can find. The person doing my MRI did tell me what size wedge they were using but unfortunately that information went in one ear and out of the other 😅 Thanks again for sharing - very much appreciated! Warmly, -Catherine, Community Moderator
Planning anything beyond today. I never know how much pain I'll have, how tired I may be or how bad the brain fog is that day.
I am sure the unpredictability of PsA can awfully frustrating for you, @Kimw. Are your friends and family pretty supportive? Best of all wishes! - Lori (Team Member)
we have realised that we will plan to do stuff but everyone knows that day by day and morn or afternoon things may change.
My friends and family are the reason I keep going. Once I let them help me things got a lot better.
as I deteriorated the first thing to go was my hobbies, the was weekends and trips away. Then it was affecting time with family and meant apart from working i did nothing but work and rest. Now I cannot do work and struggle with the socialising and family time.
It’s meant I need to change the way I think and act in everything I do.I have a home in the mtns with a brook running through ,i have never walked to the end of the property before, walk down wasn't too bad, walking back was another, with my walking stick, I was bed ridden for a week ,pain water all the fun stuff, it's so hard to plan things, my VA caretaker knows Wich is my wife a nurse rn of 30+yrs ,boy did I luck out ,hang in there man I was diagnosed with PsA 11/2020. I had no idea of what was coming. I have a high paying corporate job that I loved and excelled in for 20 years. I was able o juggle work, marriage, parenting, family and friends throughout that time. Now I only have energy to work and take care of my family. I am grateful to be able to do this but I don’t have anything left for myself… rest, hobbies, exercise. It is rough.
