has anyone tried supplements? I’ve read that Glucosmaine/Chondroitin/MSM is good for joint health and anti-inflammatory. Also, Omega 3 is good for anit-inflammatory I’ve talked to an acupunturist and she said she can help. Also talked to a holistic chiropractor that can treat Psa without meds. Curios if anyone has chosen any of these treatsments and had successful results
Hi, New to the site, just now exploring.
I have tried so many things! Some worked some didn’t. I use B-12 for energy and that works wonders when I’m in a flare up and chasing two kids around the house. I also take vitamin D because I’m losing bone density :/
I’m currently on meds from my rheumatologist, because my joints are pretty deteriorated. I drink certain anti inflammatory smoothies that help some but don’t take all the pain away. I’m currently looking in to a “float” spa. It’s like this water filled giant egg you float in, but the water is loaded with minerals and salts and it’s supposed to work wonders. My rheumatologist is working on the medical paper work to get me the arthritis discount. Good luck in your journey, and by all mean if you find a good remedy let me know!
Scott – I haven’t tried the supplements that you mention but I too have heard that they are good for the joints. I have tried omega 3 fish oils, vitamin D, magnesium, zinc, probiotics, B vitamins and turmeric (I think that’s everything, whew!). The only thing I have found that made a difference for me personally with the inflammation was turmeric. But everyone is different of course. I hear a lot of people say fish oils and vitamin D are particularly helpful. You may find these articles on alternative therapies helpful:
Stephanie – I would love the recipe for your anti-inflammatory smoothies! What sort of ingredients do you use for them? Please keep us updated on the spa therapy, this sounds like heaven to me!! Best of luck and I hope you are able to find some relief soon.
Stephanie S is on meds from rheumatologist and also trying to find relief with supplements. CathyD, are you also on meds or are you just trying to find relief through supplements? Right now, I am just doing the supplements. I started with the supplements about a month and a half ago and they seem to help, but rheumatologist cannot guarantee that joint damage is not happening just because the pain has eased. I would love to hear from someone who has been successfully treating this with only supplements for many years, and has not seen significant joint damage. I spoke to an old neighbor who has been fighting Lupus for about 30 years. She tried the drugs way back, then but gave them up for diet and supplements. I think there are some commonalities between the two diseases
I’ve just been diagnosed in the past three months with Psoriatic arthritis. Looking back it’s been a long time coming and misdiagnosed.
I was taking high dose steroids at the time because of severe sausage fingers, left hand joint swelling, right hip bursitis and a ruptured Bakers cyst behind my right knee that cut off the blood supply to my lower leg as well as severe arthritis and stenosis in my low back. They thought I had a DVT (Blood clot) .
I’d already been clean eating for some time but then incorporated and modified to follow John Paganos diet exactly, 12 weeks now. I did get worse initially but I’ve added supplements like an Essential Fatty Acid EFA, I use YES EFA blend from Amaxon and made severe dietary adjustments.
It’s been Mr. Toads wild ride and my rheumatologist did a lousy job of educating me about the med process with Methotrexate. She is the only one on my plan where I live.
I also go to acupuncture 2-3 times per week and take Standard Process supplements the Acupuncturist prescribes. She gets me out of the OMG pain down to somewhat manageable since I own my own business and have to work right now.
I think each of us has to research and ask and knock and seek until we find what balances things and keeps it under control. I also added massage and my insurance covers it. Check with your insurance, you may have to push for this as medically necessary.
I was convinced that I could knock this out with Alternative practices and supplements but in my case I’ve had to be willing to do both the Alternative and Traditional medicine as well as life changes. My PSA is not under control yet and it makes for long painful nights but I’m hoping the Methotrexate injectable in a higher dose coupled with the alternative diet and supplements and acupuncture will get things back to manageable.
Cathy D my by far favorite smoothie/juice is pineapple ginger. So good! Pineapple and ginger both have anti inflammatory properties in them. Carrots and sweet potatoes also! I got most of not all of my juice recipes from Pintrest. Like Scott I’m always in search of a natural method. My sister makes lotion for my patches that’s like pure magic when it comes to soothing them. I have found a pretty good mix of natural and man made remedies to help day to day life. I actually just got my medical paper work back to get the discount, and will be booking my appointments asap! I will let you know how it goes. I’m also looking into natural mineral springs near me to vacation at this summer.
Hi Findmygroove, thanks for the question! I went down the supplements route (I don’t really like the taste of turmeric) so I just took what was advised on the label. I was also sure to check with my doctor before taking it, as I believe it can interact with some medications.
caseygrace, thanks so much for sharing that article – lots of great information there!
I feel my best when I’m taking my supplements and sticking to my routine. Vitamin B-12 – liquid complex version – works great for energy for me. I take with D because it helps absorption. Apple cider vinegar, a greens drink, smoothie/teas with turmeric, curcumin, boswellia, immune support, essential oils, mostly anti inflammatory diet, yoga and strength training are all part of my routine. The link below outlines everything I do when I’m sticking to it. It’s hard, though. I created this after being asked several times what I use, sometimes not necessarily by those with PsA, but other inflammatory issues as well. I have just recently changed from otezla to arava and haven’t updated that on there yet. Remember, we are all made differently. What works for me, may not for you, or in different combinations. And, I have discussed these with my rheumy and she has documented them in my chart. Hope it helps!
shaunamae, what an amazing resource!! Thank you so much for sharing this with us, along with the Pinterest boards! I really don’t like the taste of turmeric, but I am tempted to try that turmeric lemonade. I think the juice would definitely help with the taste!
Hello everyone. shaunamae – that is a great resource, thanks! I have been trying to switch to natural methods but I think it’s like diet – takes time to see actual results. I believe we ALREADY take so many pills and medicines it doesn’t hurt to try something alternative and natural. Have anyone tried Gotu Kola or Espen Salt? Sure it depends on each individual but bath in Espen Salt brings relief to my itchy skin. It’s generally available in stores or online just look up a dosage.
There is a site I believe to be quite helpful when it comes to natural remedies – some of tips are really worth trying, some not so much 🙂
Hello out there! I’m newly diagnosed with PsA and I’m looking for alternative treatments. I’m currently working through Whole30 because of newly discovered food allergies. I was just starting to add foods back when I got my diagnosis. I’ve been told that a nightshade free diet is helpful for a certain segment of the population, so I’m attempting to remove those as well. It’s really limiting my food choices. If it works and can keep me off pharmaceuticals even for a while, it may be worth it. Im just wondering if anyone out there has had success with it and can be a cheerleader for me at a discouraging moment in this process.
In exchange for your encouragement, I’m willing to share a recipe for an anti-inflammatory tea that you may find helpful.
In a sauce pan, simmer 6-8 c water (I never measure), 1 cinnamon stick, 3-4 cloves, 10 pepper corns, 8-10 whole green cardamom pods, and 1 teaspoon each ground ginger and turmeric. (You can use fresh ginger and turmeric as well – maybe 1/8 c each, but it’s not necessarily any better and it’s more work and expense.). Simmer 5 minutes or so and enjoy. I like a little stevia in mine. Good hot or cold.
I so fee your pain.. I made several posts recently on the other board about the same thing.
I’m currently doing AIP (give it a google) as directed by a naturopath.. it’s helped moderately.. I was doing keto and for me, the AIP provides even more relief. Using tumeric and probiotics with the diet.
I’ve decided after a lot of careful considering to try sulphasalazine and take away the tumeric after a failed trial of methotrexate.. at least I’ll know how I felt on the diet alone and I can come back to it if need be.
Coming to terms with the meds is very hard so I empathize completely. Good luck with your choice.
I’m in very much the same boat, crookedtree. We can be support buddies. 🙂 I just got diagnosed at age 32 on December 7th, 3 weeks ago. Over the last year, I’d had 6 stress fractures in my feet (the first one was legit from training for a 10k) and my swollen toes didn’t get back to normal (they still haven’t). I’ve had ALL the XRays (neck to feet) and so far no joint damage is visible. I’ve been a research fiend and I’ve decided to go with the “kitchen sink” approach, where I’m trying everything that seems reasonable all at once while I have this initial motivation.
So far, I’ve tripled the amount of water I drink and I’ve quit caffeine; I had been an avid addict since my teens. I’ve been drinking apple cider vinegar (with honey, cinnamon, and hot water), turmeric tea, and homemade bone broth. I’ve cut out as many inflammatory foods / possible allergens / highly acidic foods as I can (gluten, dairy, red meat, added sugar, alcohol, eggs, nightshades, legumes, shellfish, tree nuts, chocolate, among other things); I’m planning to add them back in gradually to see which things affect me personally. I’m taking a multi-vitamin with B12 and folic acid as methylfolate (I have one of the MTHFR mutations), a vitamin D and calcium supplement, and I just ordered a vegan Omega 3 made from algae from vita fusion; we will see how that goes. I also started taking epsom salt baths, especially foot baths for my toes, since they are my main symptom (Nursal makes a great heating foot bath that is suitable for epsom salts and essential oils). Heat usually helps in the morning and I’m working on reducing my stress.
Although I’m not sure which of these things or combination thereof has had the most effect, I have seen some results. In these 3 weeks, I’ve lost 6 pounds (now 5’3″ and 131) and some of my plaques have started to shrink and ‘fade’ into normal skin. My toes have not shown as much improvement as I would like….But it helps when I talk positively to them. In fact, my body in general responds well when I stop fighting the pain and start thanking it for bringing the issue to my attention.
Staying committed to this rather strict regimen has been easier with a short term goal and a long term goal (though Christmas was Tough!). My short term goal is to be able to return to easy to moderate ballroom dancing for more than 1 hour at least 2 times a week without fear of pain or fatigue. My long term goal is to be able to hike a 14er. So, if you’re finding it difficult to commit to the alternate approaches, it might be helpful if you think about a short term and a long term goal.
Lastly, I hold myself very accountable with a daily survey using Google Forms. With it, I track my morning and evening mood and symptoms, bowel movements, beverages, food, exercise, and treatments such as foot baths. I’m going to analyze the results and I imagine it will make it easier to discuss how things are going with the rheumatologist, the gastroenterologist, etc.
As for meds, the first rheumatologist I saw wanted to get me started on methotrexate ASAP, especially with my recent history of stress fractures. I’m going to get a second opinion this Friday. I’m hoping we can find something with less side effects. Like I said, I’m willing to go with the whole kitchen sink…including a very low dose of meds if the second doc really thinks it necessary.
Best of luck to you, crookedtree. Let me know how things are going. 🙂