The endless flare.
New here. I was dx'd with psa 3 years ago and have not had any significant relief except for 10 days on Humira and as quickly as it worked, it just quit.
I have repeatedly learned the hard way not to push myself like I used to.
I have only been off of prednisone for 8 weeks in the last 24 months.
Everytime I think, 'well this must be the worst of it'...another joint gets involved.
The chronic pain is a bummer to put it lightly. The emotional toll is expensive. I am constantly meditating or pulling from my tool box on staying mentally ok. Thank god for my amazing therapist.
I am 49 years old and have osteoporosis from the prednisone use. In November I had a respiratory infection, I coughed so hard I broke my back. I went to work everyday out of some weird pride thing. I am a RN. Luckily my job is mostly phone and computer now. No more ER nursing for me.
2 days ago I tripped and broke my wrist and the flare I had been in magnified.
I am really struggling. I had the day off because it's too hard to work with my broken wrist. I can't mouse. lol
I went to have a pedicure for the first time in months. Just sitting in the chair was painful. The salon's credit card/atm system was not working and the woman tried to keep my card and insisted that "You should just be able to walk down the street to the bank and get cash." Well, it would be hard and I am not sure I could do it. Of course I don't look ill or unable to walk well, and I guess that was the frustrating thing. She wouldn't give me my card back. Another customer tried to pay and decided to walk down to the bank. I literally had to snatch my card back. I now have 2 charges from this place and I am just too over it to call the bank. I got in my car and just sobbed.
Anyway, let's pray the Otezla starts working and I can get off the prednisone for good.
Thoughts?
Oh yes
I know the balance we walk with prednisone well. One minute it is a godsend for me, the next I’m raging at the world over every little thing. For better or for worse, it is the go-to for immediate relief of the overwhelming symptoms of PsA.
I am so very sorry about your experience with what was supposed to be a relaxing and enjoyable experience. No one but one of us would understand the difficulty of being judged not because of how we truly are, but because of the invisible illness that we carry around. I too am no stranger to “pushing” myself into a flare. It truly is a fine line we walk every second of every day. A broken wrist is no joke! And of course, everything is compounded because of the PsA. I’m praying that Otezla gets to working for you and that you are able to get some relief from the constant flare soon. How is today going for you? Have you had to make many adjustments due to your broken wrist? Also, I just hope you don’t go back to that salon ever again, they certainly don’t deserve your business after treating you so terribly when THEIR machines weren’t working. That’s just terrible! Sending you a gentle squeeze and please check in a let me know how you are managing. -Leanne, Community ModeratorHi Leanne! Luckily I am the kind of person that wakes up optimistic everyday. Thanks for the words of encouragement, I really appreciate it. You put it well. It truly is an invisible illness.
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