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How would you describe the pain from PsA?

  1. Like a hammer.

    1. The pain can be systemic at times. It often increases when the Tylenol (3,000 mg/d) I use is wearing off an hour or two before the next scheduled dose. The pain and exhaustion increases in late afternoon, but medical marijuana definitely helps manage late afternoon/evening pain. On occasion I awake to pain in most of my joints. I still have a few days when I can sail through the day without too much pain.

      1. The most distinctive thing for me about this inflammatory arthritis pain is that it is unpredictable. It comes and goes without any seeming pattern, or pattern that I can recognise anyway. I just get pain in a finger, one or both knees, one shoulder, or for the last couple of days, one side of my jaw. It's an aching pain, but sometimes it can be very sharp, especially when moving the joint (walking upstairs, chewing, yawning). It often hurts more at night when trying to sleep, and is stiff and painful in the morning. The pain might get worse for a couple of days, then basically stop — only to return a couple of weeks or months later. There may be swelling as well, but not always. Like the person above, I have morning stiffness every day, but it is much worse during flareups. The morning stiffness feels like someone has poured concrete into my veins. On a good day, it only lasts about 30 to 40 minutes. On a bad day, it can last for two hours. I am fairly new to this disease and just getting medication sorted. I'm on methotrexate injections at the moment and have used prednisolone three times for bad flares.

        1. we hear you! The unpredictability, especially of the pain, can be a very challenging part of living with PsA. You might appreciate this article that was put together with some community members' thoughts on PsA and the lack of predictability, https://psoriatic-arthritis.com/living/unpredictable-uncertain. How are you finding the methotrexate injections to be? Have you been on your treatment long enough to start to notice a difference in whether or not it's helping? Sending you gentle hugs. -- Warmly, Christine (Team Member)

      2. I'm still titrating up on methotrexate so not a lot of difference yet. I go to 15mg shots next week, so I suspect that's when it'll start to work. It's about week 11 for me.

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