Do you get these symptoms?
Hi all
I hope you are as well as you can be.
I was wondering if anybody was suffering the same symptoms as I have. Some of them are typical of PsA I know but others I’m beginning to wonder if they are something else and something my doctors may be missing.
They come and go and are mixed up across different days. Some days I have many, some days I have nearly all at once.
I also have a hiatus hernia so that may be confusing some of them, but here goes. May be therapeutic for me to just list them anyway. 😊
My psoriatic arthritis symptoms
- Joint pains, especially in hands and feet.
- Muscle pains in legs and arms.
- Extreme stiffness, throughout the day, not just mornings.
- Shoulder and upper neck pain, joints crunch noticeably when moving them.
- Lower back pain from centre, moving round to kidney area and sides.
- Constant flu like feeling, head bunged up, throat sore, tired and painful eyes.
- Fatigue, sometimes so that I don’t feel able to move much around the house, let alone go for a walk.
- Severe tinnitus.
- A lightheaded feeling, sometimes to the point of dizziness and have to sit down.
Feeling like I'm in a constant PsA flare
I’ve read many people have that when they are having a PsA flare but I’m feeling it all the time.I maybe get 1/2 or 1 day a week where I feel half normal enough to think about going out for a drive for a few hours, or a walk for 1/2 an hour. Other than that it’s getting pretty hard to do anything normal.
I’m not working at the moment so my physical and mental stress has definitely dropped. I used to put a lot of my symptoms down to work stress, but the stress has faded and the symptoms haven’t. 🙁 What can I blame now I wonder? 😊
Can anyone else relate?
I’m having a telephone appointment with my rheumatology nurse in a few weeks but I was thinking of calling them before then to discuss and see if other PsA sufferers have the same issues that I’m having.I hate to bother them though as I know they have a huge patient list and some will be a lot worse than me I’m sure.
I just wondered if you have or are experiencing the same as me?
I am on Enbrel for the PsA and PPI’s for the hiatus hernia, although these are dropping and only taking one every other day for another 6 weeks before coming off them all together.
Thanks for reading
Take care
Greg.
Hi
. It's good that you are thinking outside the PsA box. Too often, people attribute all of their symptoms to PsA and overlook other potentially serious health conditions. All of the symptoms you mention could be related to PsA and might be an indication that Enbrel is not effective for you anymore, but they might also point to something entirely different. It is wonderful that you plan to talk with your rheumatologist, but you might also want to ask your primary care physician to run tests for such things as anemia, vitamin D or B defficiencies, thyroid disease and diabetes. These things can creep up on you and go unrecognized. Better to play it safe. I hope you get more input from community members and that you find some relief. It can be so mentally exhausting to be physically fatigued all the time. Thinking of you. - Lori (Team Member) I would definitely have your Vitamin D checked. Mine was severely low which can cause lots of problems. Low Vitamin D is commonly found in people with autoimmune diseases. I struggle with all the symptoms you listed except tinnitus. I pray you get some answers and relief! thank you Auggie. I did have it checked a year or so ago and it was on the low side but not dangerously so according to my GP. I take vitamin D supplements. The amount of antibiotics and PPI’s I’ve had in the past 6-12 months can’t have helped matters I’m sure.
I’m still waiting for the hospital to get in touch for my initial consultation. Told it should be in the next 4-6 weeks. I know they’re under so much pressure because of Covid running rife in the UK at the moment, with no basic protections in place 😟
Take care
Greg.
I understand everything!!!! That's exactly how I feel all the time!!! Hi
I’m glad it’s not just me, and I really don’t mean that in an awful way, it just helps to know I’m not just going crazy. 😊
I spoke with my specialist nurse the other day and he said that it’s not common to have the flu like feeling with PsA, it’s normally rheumatoid arthritis that give those kinds of symptoms.
I have a telephone appointment with the consultant in a fortnight so I’ll discuss with him then.
I hope you are coping ok.
Take care
Gregit’s hard to know. I went to the doctors as my feet hurt, went numb, red/blue and cold toes and painful.
I was being treated already by orthopaedic surgeon and pain clinic and was refered to vascular surgeon.
Vascular surgeon says blood flow good so is to do with nerve compression in lower back.
Now I find out it’s a PsA symptom. Point is that any symptom need checking out as you could have other issues.
I have many symptoms of what you have but not flu like symptoms more extreme fatigued due to aches and pains.
