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PsA causing swaying sensation

I’ve been recently diagnosed with PsA. I have had a swaying sensation that is 24/7 and am wondering if it’s due to PsA affecting the bones in my ear. I was diagnosed with Meniere’s in my 20’s and am now 54. I do get bouts of vertigo and this is not Meniere’s.

  1. Hi , that must be so difficult to cope with. Do you struggle with nausea because of this? It is possible for PsA to cause inflammation in the inner ear, which can present as dizziness and balance problems. Here's a couple of articles which I thought may be of interest:
    https://psoriatic-arthritis.com/living/vertigo
    https://psoriatic-arthritis.com/living/balance-problems



    I'm hoping others will chime in here with their personal experiences. Have you been able to ask your rheumatologist about whether this symptom could be related to your psoriatic arthritis? Warm wishes, -Catherine, Community Moderator

    1. I'm sorry you have to go through this. I have that swaying motion, and it comes with balance problems and sometimes nausea. Some days are good, some bad. It seems to be worse when my overall inflammation is worse. The world sways and rocks. My first presentation was after a vaccine, and it was diagnosed as vestibular neuritis. You might consider an ENT checkup, just to be sure your problem isn't that. I wasn't able to drive for about 5 weeks, even with the round of prednisone to help calm things down. What I have now (on & off) is much milder. I only hit a wall, doorway or floor on occasion. My best advice is to move slowly and purposefully. And please tell your rheumatologist. That's who sent me for the initial ENT eval.

      1. Yes I have that sensation as well. I have real balance issues with my PsA. I’ve been using a walker/rollator for 5 or so years as a result. I’m glad to hear someone else having this same sensation I thought I was alone in this. I do have tinnitus since diagnosed with PsA about 10 yrs ago. I am 54. My rheumatologist knows about my balance issues but I think feels it’s so to the PsA that affects my feet and ankles especially the tendons so badly?! I think it’s an inner ear thing due to PsA because I never had this issue before diagnosis.

        1. So very interesting to read this! 2&1/2 years ago I was also diagnosed with Mal de Debarquement (Spontaneous onset - so not travel related) and I asked my rheumatologist if she had ever heard of others with PsA and this also. She said they are unrelated but I can barely walk due to the balance difficulties. I have also now got an essential tremor (head bobbing) which is super annoying and is like fatigue on top of fatigue.
          Interesting to see here there are others. I stagger about using a cane but have great difficulty mobilising and not because of the pain of PsA but the balance issues of MdDS.

          1. Hi . I have not seen posts from people in this community experiencing your symptoms, but I also moderate in our MS community and many people there experience both essential tremors and vertigo symptoms similar to Mal de Debarquement. Here is an article from one MS advocate who experiences the head bobbing: https://multiplesclerosis.net/living-with-ms/cervical-dystonia. Have you been evaluated by a neurologist recently? Thinking of you and wishing you the best. - Lori (Team Member)

          2. Thanks Lori,


            Yes I see a neurologist regularly and as I’m considered ‘rare’ he is pretty interested in trying to help me.
            He did say he’s worried that my cerebellum appears to be shrinking a bit so there may yet be more to this - oh joy!
            Thanks for the link.
            Cheers
            Angie

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