Fatigue
Hi all I feel I need to say hello and talk to people for sanitys sake, I've had psoriasis since I was 22 and I'm almost 50 now, I have had chronic pain for over 15years now and it's not getting any better, I've finally been diagnosed with psoriatic arthritis I can't belive the doctors couldn't put 2 and 2 together it's been a nightmare. I've been on so many med and I still am on loads of meds. I've tried every anti inflammatory known to man pregablin, duloxotine, mtx, etc etc but now they want to put me on biologics. I'm quite worried about going on them but I have to do something, I'm affected in a lot of my body shoulders,elbows,fingers,
Knees,hips,feet,ribs,back and neck and my joints have suffered alot of damage due to late diagnosis. My rheumatologist said he could have diagnosed me 15 years ago if my doctor had bothered to send me to him. I'm just so tired, tired of constantly being in pain and tried due to fatigue. Car detailing is my happy place but I'm even struggling to do that at the moment one with motivation and the other knowing what pain I'm going to be in when I'm finished and the days that follow. I've tried pacing and everything but I just feel so growned down, my hands don't work like they used to and I can't kneel down anymore and if I sit to low I struggle to get back up, I started my own YouTube channel and its doing quite well but my motivation it awful at the moment but I really want to do well but it's just so hard to even put one foot in front of the other right now. I really feel like I'm letting my family down as I'm not working much and it all feels a bit much just lately, anyway sorry for the rant and hello everyone
Hi
welcome to our community. We are glad you are here. I wish it was under better circumstances where you were not in so much pain. Rants are welcome here. We all understand. You will get nothing but support here. Two things: (1) Do you know the National Psoriasis Foundation has a program called One to One which will pair you with someone who can provide support or answer questions. You can find out more at www.psoriasis.org and (2) we also have Facebook pages where you can find more articles and connect with others. Those are plaquepsoriasisdotcom and psoriatic-arthritisdotcom on Facebook. Again, welcome to our community we are glad you are here. Vickie W., Team Member Hi
welcome to our community. We are glad you are here. I wish it was under better circumstances where you were not in so much pain. Rants are welcome here. We all understand. You will get nothing but support here. Two things: (1) Do you know the National Psoriasis Foundation has a program called One to One which will pair you with someone who can provide support or answer questions. You can find out more at www.psoriasis.org and (2) we also have Facebook pages where you can find more articles and connect with others. Those are plaquepsoriasisdotcom and psoriatic-arthritisdotcom on Facebook. Again, welcome to our community we are glad you are here. Vickie W., Team Member Thank you I appreciate that I'll have a look
Hi
, I wanted to join Vickie in welcoming you to our community. Please feel free to reach out here anytime you have questions, need support, or just want to vent.
I'm so sorry that it took so long for you to get a diagnosis. Unfortunately, this is a common experience among PsA sufferers. I'm sure finally getting some answers has brought a lot of mixed emotions for you. I can completely relate to doctors not putting 2 and 2 together. It seems there needs to be a lot more awareness of psoriatic arthritis among medical professionals.
Do you know which biologic your rheumatologist is thinking of trying out? If you haven't done so already, it's worth browsing the forum posts here - lots of people have shared their experiences with the various biologics. Hoping you can get the relief you deserve. Please keep us updated if you can. Warmest wishes, -Catherine, Community Moderator
