minelcannucciari
It can take a long time to get diagnosed with psoriatic arthritis. Since PsA is a progressive condition, an earlier diagnosis means more time to find an effective treatment plan to hopefully slow or stop further progression. How old were you when you were diagnosed with PsA?
mema51 Member
Lori.Foster Community Admin
I am glad you finally did get your diagnosis,
mema51 Member
Best regards to you. Thank for being a concerned & thoughtful PsA friend!
Sheryl
himalia Member
Lori.Foster Community Admin
Hi
himalia Member
Heather EC Member
I have just been diagnosed, or at least the rheumatologist is almost sure, I have PsA. I am 42 and only have pain in my left wrist, but it started in September last year. I was diagnosed with asthma at almost 3 years old, but it was very well controlled with medicine between the ages of 18 and 28 (before that the preventative medicine wasn't as good). Then I got pneumonia and ever since then I have been prone to chest infections and asthma flare ups and moderate fatigue that can last for weeks after a cold. I also have suffered from mild dizzy spells since I was around 12 and can't stand still for too long without needing to walk or sit down due to nausea or dizziness. Doctors put this down to low blood pressure, but my blood pressure is still in the normal range. I don't know if any of this is connected to autoimmune issues, or is just related to my asthma or something else altogether. Multiple chronic conditions, plus an anxiety producing pandemic and long lockdown last year and then getting back to normal life just as my wrist started having issues makes it difficult to know what is causing tiredness and certain symptoms. I did notice I had lower energy than some people and have always needed my rest and downtime, since my 20s, but it was never bad enough for me to seriously consider it might be caused by an underlying condition.
Lori.Foster Community Admin
Hi
Phobos Ilungian Member
Symptoms started last February (Feb'21) and I am 26 years old. I did not have any skin issue before from literally one night to the next day I suddenly had pain in my foot and from there on my journey began. I wasn't diagnosed with PSA up until a month and a bit later after going through various tests, scans, wrong diagnosis etc. and started my treatment with Meta at the beginning of April. I am currently taking Meta and Sulfa. So far I am still on crutches and am not able to walk without them. On really bad days I can't even as much leave the bed as the disease is within my left ankle, right knee and left arm and paralizes me completely.
Since I basically just "started" the treatment I can't really tell if they are helping or not, if it were up to me to say, then no, because the pain is still there and I still cannot move freely without having to fear to burst out in screams of pain.
Lori.Foster Community Admin
Hi @Phobos.Ilungian! I wish you were not in so much pain. If you have been on those medications this long and they are not helping, it might be time to try something new. There are so many medications for PsA, but they affect everyone differently. It can take a lot of trial and error to find the medication that is right for you. Here is a list of the available medications: https://psoriatic-arthritis.com/medications. Maybe you can use this list to start a conversation about your options with your doctor. Thinking of you! - Lori (Team Member)