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Oh wow, it must have felt great (and maybe a bit strange?) to be driving again, @grammi28! I hope your knee isn’t feeling too bad today. That does sound like a lovely day – I bet the Christmas parade was sweet. I wish you weren’t suffering because of the busy day though 🙁 Definitely take it easy today. Have some of that lovely soup you made! I…
Thank you Cathy. I did get some fun stuff done. I drove for the first time since my knee replacement 6 weeks ago, did some christmas shopping, which involved walking around Walmart, made a batch of home made soap, and went to the little christmas parade my grandkids were in. So I’m laying low today to get my body to forgive me.
Oh no, @grammi28 🙁 It’s so unfair that we have to “pay” for doing things. Did you get up to anything nice yesterday? I hope you were able to get some sleep last night. Hang in there! -Catherine, Community Moderator
New to this site. Feeling sluggish and painful. Been diagnosed since 2013 with PsA and Ankylosing Spondylitis. Already fused lumbar region and all other major joints are effected and some have had surgery.
Ugh, yes it really does affect absolutely everything. You’re definitely not alone in getting grumpy and irritable because of the pain! And then there’s processing how much life changes when you get PsA… As you say, I think anyone would react in that way. But I know it’s not nice to feel like that. We’re always here if you need to vent!
I overdid it today, and paying for it tonight.
I can relate to all the flare-up signs for sure
Catherinecat60 commented on the post, To My Dear Friend, Newly Diagnosed with Psoriatic Arthritis 16 hours, 47 minutes ago
I did not know what Chronic pain was until the last 5 or 6 years. But Society was dealing with withdrawing Americans off pain pills. Herion suddenly took over and the government buried a lot of people. It was
so sad and unfair to non-addicts.
Catherinecat60 commented on the post, Feeling Down vs. Depression: Is There a Difference? 16 hours, 53 minutes ago
I lost 5 jobs in 5 months. It was very depressing. My knees kept going out. I was called slow and it hurt. I still didn’t know I had this PSA. My Dad passed away and My children turned on me. I had a total breakdown at home for over 6 months. With medication increased I am no longer suicidal. Depression is horrible.
People don’t believe you when you tell
them you cannot do the exercise because it
hurts too much.
My PT refuses to send my results to my
neurosurgeon. It has been over 4 months. I
just need my MRI. I do not want to go to PT any more.I started Chiropractor but it kills my neck and lower back for two days afterwards
I feel about 80 now. I’ve just accepted that this is how my life is now. I’ve been relatively fit and healthy most of my life up until the symptoms from the PsA and diagnosis! But it takes over almost all aspects of life. I try to just get on with it but the pain and stiffness can be a bit overwhelming on the bad days and makes me a bit of a…
Catherinecat60 commented on the post, Think PsA Is Just Joint Pain? There’s More to the Story… 17 hours, 4 minutes ago
I used to be so hyper and now I can sit for hours at a time.
Hello @sharonjeanne great point- visuals would certainly be super helpful! Okay- let me quickly reach out to the leaders in my team about the best way to add photos (or maybe a quick video if you think that would be more helpful). And I’ll certainly get you some images to better show you what I’m talking about. In the meantime, a dot-grid book is…
Sharonjeanne commented on the post, How to Use a Bullet Journal to Manage Your Psoriatic Arthritis 1 day ago
Could you show a picture of what you mean by a “notebook with those little dot grids”?
And perhaps another picture of your notebook in progress? I’d like to do this, but your post is unclear to me without illustrations. Thanks.