I’m really pleased to have found this place and look forward to getting to know some other people with psoriatic arthritis! I’m hoping to pick brains a bit, too. My feet and hands are really flaring up at the moment, I’m getting very bad foot and ankle and now lower leg enthesitis bilaterally which is worse at night. Morning stiffness is increased and I have numbness in my hands. I’m up even more than usual in the night with enthesitis (and also what feels like bone) cramp-like spasms. I’ve had this for years, it sometimes leaves bruising on my ankles and feet where the spasms were concentrating and it can make me scream in pain (and I didn’t scream during either of my children being born).
My new rheumatologist recently referred me for USS and nerve conduction and whilst I’m still waiting for neuro results, the ultrasound result says only mild changes in my right hand. Whilst I’m obviously very pleased there appears to be no major damage even after 16 years of PsA I’m really surprised given my ongoing symptoms. I was really hoping that I would be finally listened to about this by a doctor. I might get some results which could point me towards some (any!) relief from this particular symptom and I feel a bit disheartened. I’ve had bloods checked and nad, I walk regularly when I’m not flaring up, I eat 5 a day, with minimal red meat and I’m kept pretty active with my kids.
Any advice or shared experiences, please? Thanks for reading.