Community Answers

  1. McFadzean author says:

    Hi MaryG. I would be really interested in what your rheumy has to say about your hearing loss. I have been told from my rheumy that PsA does not cause hearing loss but I know it does according to the statistics that there is about Hearing Loss and PsA

  2. Hello @McFadzean 🙂 I am so sorry you are struggling with hearing issues too. It can make relationships with loved ones very difficult. Not to mention making you feel like you’ve lost your mind a little bit. I wonder if you might have better luck speaking with your doctor in terms of “inflammation” in the ears, which leads to loss of hearing or hearing fluctuations. Doctors can’t argue that PsA causes inflammation (that’s kind of part of the definition), so why couldn’t it also affect the parts of the ear responsible for hearing….? Maybe that may help with the discussion with your doctor. In fact, my rheumy didn’t comment on it at all, even knowing that I wore hearing aids from hearing loss. It wasn’t until I commented to her (while discussing if Remicade was working for me or not) ” I think I might be crazy, but it seems like my hearing has improved a little…” that she stated, ” That can be a common benefit of the medication.”
    As a result, I’ve felt that since the beginning, there has been a ridiculous lack of information on the topic- not only for rheumatologists (who tend to only focus on joints) but also for hearing professionals and patients.
    My apologies for not getting back to your comments sooner. I’m still trying to find a medication that works so I battle many good and bad days. If there is anything I can do to help you on your journey, please reach out to me and I’d be happy to help in any way that I can. As with all things with PsA, we take the good with the bad and make the best of everything we can. On the upside, all the noisy toys my kids got for Christmas don’t seem to bother me so much this year 😉
    Take care of yourself and sending gently hugs,
    Leanne (Community Moderator)

  3. McFadzean author says:

    Thank you so much Leanne for you excelent advice. I do not want to upset my rheumy as I dont have the energy to look for a new one. I will see her again on the 1st March so I will wait until then to do anything about it. As I have been told by family and friends jokingly that it is good to have selective hearing. Yes, it is convenient to not hear everything but I am a curious person and also wondering what I am missing.

  4. I totally understand your concerns about maintaining a positive relationship with your rheumy, trying to find a new one can certainly be a daunting task. If you are curious about where your hearing loss might stand in the meantime, here is a website where you can take a test online as well as find many valuable resources. In my experience, I have good days and bad, so you might want to keep that in mind if you choose to take the test.
    https://www.hear-it.org/Online-Hearing-Test

    Also, depending on your insurance, seeing a reputable ENT is also a good place to start as well. In my experience, short of acknowledging the hearing loss, my rheumy doesn’t do anything to “treat” it. You can also go to a local hearing aid store for a test, but be aware, they will be accurate in testing but will likely also want to discuss purchasing hearing aids. With hearing loss related to PsA, I highly suggest working with a doctor of audiology.

    Best of luck and please keep us updated on how you are doing. There are so many physical and emotional elements to living with this disease. I hope you are coping well.
    Leanne, Community Moderator

  5. MaryG says:

    I’m seeing my doc tomorrow. I feel I have hearing loss. I’m going to talk to her about it. Thanks. I didn’t know my PA may cause this loss.

  6. McFadzean author says:

    Thankyou Victoria for answwering my post about hearing loss. I have asked my rhuemy once again about hearing loss and what Leanne has said as well as the statistics. So far I have not hearde back from her.

  7. VickiN moderator says:

    Hi @McFadzean! Hearing loss can be one of the symptoms of PsA. We have some more info here if you’re interested:
    https://psoriatic-arthritis.com/hearing-loss-risk/
    Hopefully some community members can chime in too. Warm wishes,
    -Victoria, Community Moderator

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