Skip to Accessibility Tools Skip to Content Skip to Footer
Living With the Question of Comorbidities

Living With the Question of Comorbidities

What is this new ache? What is this new pain? Hmmm, that is an odd rash, what’s up with that? I wonder if I should get this looked at? Is this related to PsA, some new hurdle to tackle, or a side effect of my new medicine?

The nature of psoriatic arthritis and it’s ability to impact so many systems in my body makes it very hard for me to tell if a new “issue” is PsA related, medication related, or not related at all.

Feeling anxiety

As if the daily challenges of living with psoriatic arthritis aren’t bad enough, it seems that at least once a week I find myself asking, “Is this related to my PsA?” It is very hard to tell the root cause of a variety of symptoms. Just the other day, I had an odd new rash pop up on my hand. My mind went through the likely possibilities…psoriasis, reaction to medicine, allergy, other autoimmune issues…the list goes on and on. Not knowing the cause of new symptoms causes me a great deal of anxiety about what may be going on. After basically ignoring my first symptoms of psoriatic arthritis, to my own detriment, I have now become a bit hyper-aware of each new ache, pain, rash, or swelling. This uncertainty tends to cause me a great deal of anxiety.

Adding yet another doctor

Literally, the last thing I want to do is add yet another doctor to my growing team of health care providers. When I have a new symptom, this is one of my fears. It can be very difficult to tell if a new pain requires a visit to a new specialist or not. No one wants to pay another copay or add another doctor into the appointment rotation. But at the same time, we can’t bury our heads in the sand either.

Seeking experiences of others

One of the best things I have found to do is ask. This lovely website has an amazing community of people who are also living with psoriatic arthritis every day. Ask us about what you are experiencing. Take pictures, post questions, and check around. Chances are, if it is PsA related, you will be able to find someone who has been through the same thing and can offer advice, suggestions, and guidance. I greatly value the experiences of others. If we stick together, we will be able to offer each other a great deal of support and understanding.

Taking each new day as it comes

I find it is very easy to get overwhelmed with all of the challenges that living with psoriatic arthritis presents. Getting caught up in each new ache and pain can take over your life. The thought of living with this for the rest of my life gets me very upset. I begin to feel very uncertain about my future when I don’t know what I will face or when I spend too much time fixating on what “might be.” I have to remind myself to take each day as it comes. I only have enough energy to tackle the mountains that are directly in front of me, not the ones over the next hill or around the bend. I know it is hard, but I really try to take each day as it comes. I celebrate even the small successes and find joy in simple pleasures.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Psoriatic-Arthritis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • VickiN moderator
    2 years ago

    Leanne, I just loved this article! Thank you for being such a loving spirit 🙂
    -Vicki, Community Moderator

  • Casey moderator
    2 years ago

    Oh my gosh, Eurotrekker! I cannot believe this. My heart aches for what you’re going through right now. First of all, it’s so admirable to read that you devised this plan and followed every step to a T in order to get what you needed (and deserved). That’s amazing. However, I’m in absolute shock to read how this turned out. How horrible!!!! Is there anything you can do about this, or anyone you can report this to? I completely understand that you’re so stressed about this, and I want you to know that although we may not be there in person to help with this, we are here online whenever you need a friend to talk to (or an ear to vent to!). Please keep us posted with this, and do not give up. I believe that everything happens for a reason, and you’re a true fighter. This will all work out the way it is meant to be!!! How frustrating in the meantime though!

    Please continue to keep us updated! We’re sending gentle hugs your way!!!

    -Casey, Psoriatic-Arthritis.com Team

  • Eurotrekker
    2 years ago

    Leanne, I feel the same way. I hate going to doctors for fear of being diagnosed with yet another disease. I want to say, “No thanks. I’ve got plenty.”.
    Lately I’ve been feeling more lethargic than even normal for me. I don’t know if it is side effects of my injection lingering, the excessive heat and humidity, or stress of trying to make major decisions. Also, yesterday I received devastating news. I have been working for three years and shelled out lots of money to get a grant to help to build a handicapped accessible home. My current 100+ year old home is literally crumbling around me. Floors are sinking, ceiling is cracking, pipes are breaking, windows sills are rotting, mold is in the house, etc. It’s so bad that the neighbors children all consider my house to be haunted. Several inspectors have deemed it unlivable. However, I have no choice. Apparently I make too much money for any assistance (I’m living on disability), but not enough to live. I was assured almost three years ago that it was 99.9% certain I would get a grant to tear down my old house and rebuild a new one that would be handicapped accessible. It wouldn’t be free. I would still have a mortgage, pay taxes, utilities, and upkeep, but I would get a grant for part of it. However, I had to pay off my mortgage, pay for title searches, inspectors, surveyors, deeds, etc. I used all of my savings, and the little money I got from my mother after she died. It put me in a financial bind, but would have been a worthwhile investment. The guy in charge, this is through the government, was fired, evidently for not giving grants out for over two years. They put a new guy in. He decided to revamp everything. So, after nearly three years and lots of my money, he’s decided they are only going to give grants to people who only need minor repairs. The people in dire straights get nothing. That includes me. I don’t want to live off of the government. I never have. I have worked since I was 14 until this terrible disease took over my life.
    Yesterday was a terrible day. Not only were my illnesses giving me problems, but then I received the terrible news. I don’t know what to do. I’m beyond stressed, which we all know is detrimental to those with PsA.
    Deep down I know God has a plan. It would be nice if He could share this info and speed it up a bit.

  • Poll