Tell Us You Have PsA Without Telling Us You Have PsA: The Fatigue Effect
The trend “Tell us without telling us,” or “tell me without telling me” allows people to make pointed statements that play with stereotypes, defining characteristics, and the opportunity to share inside jokes.
As unique as psoriatic arthritis can be, we asked our Facebook community, "Tell us you have PsA without telling us you have PsA" The responses were overwhelming and we've noticed some consistent themes, so much in fact that we're creating an article series to play on the great shared topics.
So, tell us
The fatigue that people with PsA have is real and it interferes tremendously with daily life. If you live with fatigue from psoriatic arthritis, we don’t have to tell you what it feels like. However, hearing from other people with PsA who are also wrestling with this nagging, persistent feeling of exhaustion can help you feel less alone. Here is what a few of those with PsA had to say about the fatigue effect...
"I feel like I need a crane to pull me out of bed"
"Never feel rested"
"I am so fatigued I need to lay down almost as soon as I get up"
Does fatigue play a large factor in your daily life?
How else does fatigue impact daily life?
So, what else do those who live with PsA have to say about stiffness? Look no further. Our very own advocates share their own experiences. Cynthia breaks down the difference between tiredness and fatigue - an important detail! Elizabeth explains how important it is to recognize and not ignore your PsA related fatigue, you might be doing more harm than good! While Leanne simply breaks down her own experience and frustration with fatigue. It can be so debilitating.
What are some ways you've tried to combat fatigue?
Tips to manage fatigue
Chronic fatigue can be a daily occurrence for those with PsA and can be an incredible challenge, sometimes even surpassing the primary symptoms of the condition such as joint pain or stiffness. If you’re waking up each morning without energy, here are a few tips to get you through the day.
- Improve sleep hygiene: Create a relaxing bedtime routine, eliminate screen time close to bedtime and make sure you're thermostat is at a comfortable temperature.
- Light movement and gentle exercise: Exercise can help fight fatigue including reducing inflammation, increasing endorphins, preventing deconditioning, and improving sleep.
- Mindfulness: Now this can mean many different things. Using a meditation app, going for a walk, or simply doing something that you love. Prioritizing your self-care can increase the ability to stay in contact with the present moment regardless of unpleasant thoughts and bodily sensations (including fatigue)
- Communicate: Managing fatigue requires a well-rounded approach that may include your medication regimen, managing your mental health, and making other healthy lifestyle changes.
Connection in community
While all of this is a comical and light approach to what life with PsA can entail, we know there is so much more.
How can we get loved ones to understand the impact of pain? Are we able to push through this, or should we just rest? If we choose to rest, how do we push past the guilt? And do not even start on the overwhelming treatment options and doctor relationships.
Here at Psoriatic-Arthritis.com, we are a community that offers a safe place for sharing, support, validation, and kindness. However you feel comfortable getting involved, we are here for you.
Do you think your family and friends understand your fatigue?
Were you ever misdiagnosed before being diagnosed with psoriatic arthritis (PsA)?