When Is It Time To Have "The Talk" With Your Doctor?
I think we should schedule that visit when we are not improving after a certain amount of time has passed.
Are you having regular flare-ups and just not feeling like yourself? I know that when I didn't have the energy to get out of bed, it was time. There are times that our medication just doesn't work, let your doctor know that.
We need to learn how to talk to our doctors so that we can get better care. Have you ever had these conversations with your doctor? We need a treatment plan that works.
We would love to hear your thoughts on this.
Yes when my quality life has deteriorated significantly.
severe flare, mostly fatigue. Appt with Dr next week 
oh dear! I'm so sorry to hear you're in such a severe flare. I hope that next week comes quickly for you and your doctor can help you get some relief. Please, if you're comfortable, keep us posted. And know that we are here for you. Sending you gentle hugs. -- Warmly, Christine (Team Member)
When pain becomes to unbearable
I hope things have been okay lately. Do you have a plan when this happens? Wishing you the relief you deserve. -Erin (Team member)
