The Koebner Phenomenon ...
Does anybody else experience this ...
https://www.healthline.com/health/koebner-phenomenon-psoriasis#deep-koebner-phenomenon
I've noticed this happening to me for years, but have just now discovered there's a name for it; and, that it's part and parcel of this total package (that nobody ever wanted) known as Psoriatic Arthritis!
I'm not in a position to afford specialists and treatments, but I've always heard awareness is half the battle ... Knowing I'm not alone (though I'd never wish any of this on anybody) helps me to cope & deal with the overwhelm a little better too.
Thank you ...
💜
Maggie/0223, you're definitely not alone in this struggle. Unfortunately, I'm very familiar with the Koebner phenomenon - skin injury is one of my psoriasis triggers (alongside stress and infection). Our sister community for psoriasis has a couple of articles on this phenomenon, which I thought may be of interest:
https://plaquepsoriasis.com/living/koebner-phenomenon
https://plaquepsoriasis.com/living/koebner-trigger
I had not heard of "deep Koebner phenomenon" before - that's definitely something that I will be looking into. I have seen a few people say that their PsA has a tendency to settle in to places of previous injury. I haven't personally experienced that (knock on wood!) but thought it was worth mentioning.
Is it your skin that is affected by this or your joints (or maybe both)? I hope there's some comfort in knowing that you're not alone in this, and discovering that there's a name for what your experiencing. Gentle hugs! -Catherine, Community Moderator
P.s. Sorry if you get several notifications for this reply - I keep getting all sorts of bizarre code appearing in my post for some reason!Thanks Catherine ... Gently hugs you back!
I think both are affected.
I can see it on my skin and definitely feel it in my joints.
I haven't seen a doctor since my disability came through at the end of 2021.
The x-rays ordered by SSDI back then showed way too many joints involved and many of them already way past the "early detection" for "effective treatment" stage.
Thank you for these links!
Again, I may not be able to afford specialists & treatments, but just knowing what's going on and that I'm not alone helps!
💜Maggie/0223, thank you! Gentle hugs are always welcome 🥰
I'm sorry you're dealing with all of this, Maggie. Dealing with the symptoms and everything that comes with them is hard enough. The financial side of things really adds a whole other dimension to dealing with this condition. I'm not sure whether we've shared this resource with you before, but we have some general information on managing healthcare expenses: https://psoriatic-arthritis.com/resources-cost
Regarding the Koebner phenomenon, I've started trying to be mindful of all of my movements, with the intention of trying to reduce the chance of injury (and also trying to lower the number of mugs and bowls that I drop and smash 😅). Obviously that's not always possible but it is something I'm consciously trying to do. It seems very unfair that we have to deal with an injury and then we might also have to deal with a flare or new patch of psoriasis as a result.
Thanks so much for starting this discussion, Maggie. It's always good to connect with people who are going through the same things. I hope others will share their experiences here too. Great to have you here! 💖 -Catherine, Community Moderator
Hi Maggie/0223, and thanks for reaching out! I'm so glad that you were finally able to put a name to what you've been experiencing and, as Cathy mentioned, this is something that many in the psoriasis (and PsA) community also experience. In addition the great resources she shared with you, you might also be interested in joining the psoriasis community and posting over on their forum, https://plaquepsoriasis.com/forums. It can be so helpful to put a name to symptoms, and to know that you're not alone! I hope more of our community members here can share their experiences with the Koebner Phenomenon with you as well. Wishing you a gentle day. -- Warmly, Christine (Team Member)
Thank you Christine. I'm really glad I found this site. Before then I was stumbling around in the dark. I hope you have a gentle day as well. 💜 Maggie/0223 you're welcome! We are here for you, so please reach out any time. (And sorry about my comment above. I'm not sure what happened with the gobbledygook at the beginning.) -- Warmly, Christine (Team Member)
Maggie/0223 - I also experienced Koebner, I understand what you are saying 100%. It can be tough to manage the finances and get to see specialists etc. How are you managing at the moment? It can be very overwhelming. We are here for you, every step of the way. -Clair Psoriatic-Arthritis.com team member
I tend to cry a little, pray a little & cuss a lot, taking things one day / one hour / one minute at a time - and I also give myself a lots & lots of pep talks and attagirls. I have a therapist that was already working with me on childhood trauma issues, and she never missed a beat as we watched this dreadful condition take me down in 10 short years! I do believe that staying in the moment is the best management as I find it helps tamp down the overwhelm. 💜
