Struggling and Care Giving
Besides struggling with the pain from this disease and dealing with the loss of things I can no longer do without pain, I work 3 jobs and care for a disabled husband. I am looking for understanding since no one in my world seems to get it. They ask about the pain and how I am feeling but I don't think anyone really understands the magnitude of how completely destroyed this disease makes me feel. I'm tired and just want to collapse and cry most of the time. I'm tired of the pain, the lack of support, and I guess just tired of life in general. I've come on here hoping to find people like me so we can connect and hopefully support each other.
you have definitely come to the right community. We are all about supporting each other here. Sounds like you have a lot on your plate. Caring for a disabled husband when you have a debilitating disease as well is so hard. I know the struggle. I cared for my mother up until the time she passed. I wrote an article entitled Being a Caregiver When I needed a Caregiver. You can find it here: https://psoriatic-arthritis.com/living/physical-pain-of-caregiving Hopefully that helps resonate with you. Here is another article as well from another contributor: https://psoriatic-arthritis.com/stories/caregiver Please give yourself grace. We are here for you. Vickie, Team Member
