New Person
Hi everyone! My name is Brenda and I am 26 years old. I was diagnosed a year ago and trying to cope with this disease. I never wanted to read a lot about this disease only take my medicine and thats it, but as the time goes by I get so lonely because not my family or friends know what I am going through or saying things to me like I put a lot of excuses when I am talking about my future,e I am a doctor and always wanted to be a surgeon but with the disease I have to think what I want to study in my specialty like a little less difficult because I never feel well. And I don´t think is an excuse... it is my future we are talking about. Even if I am a doctor when I read back at my books we didn´t get a lot of info on this disease so finding this page a week ago made me so happy because I am sorrounded by people who go through the same thing as I do.
So just wanted to say hi and that I feel so blessed that I found this page.
Hi Brenda! Welcome to the community!
These kind of comments from friends and family can be so upsetting. I have dealt with similar in the past and t's like they completely look past the fact that you've had to change what you want to do/your dream to try to adapt to and prepare for life with a chronic illness. I am very sure that whatever you decide to specialise in, you will be a wonderful doctor! If you decide not to study to be a surgeon, are any other areas piquing your interest?
I am so glad that you found us - it can really help to connect with others who understand exactly what it's like. We are all here to support you <3
Thank you so much for those words... I amm still looking for what I am going to do... step by step...
Hi Brenda. (My wife's name is Brenda.)
I get not wanting to obsessively read about your condition and just wanting to live. I get that way, too. But at the same time I find comfort both in understanding the science of my disease and its treatments, and in talking to people who really get what is is I'm going through.
I think you have to strike a balance. You can get so into your condition that it swamps you ... starts to define you. You can't let that happen because PsA isn't who you are, it's just what you have. But at the same time understanding it better can help you live with it better.
This community is growing more active by the week and I'm glad that you found it. The more people who participate the better it is for all of us.
