Looking for Home Treatments
I was diagnosed with PsA 18 months ago. Since December 2020, my symptoms are so severe I can barely walk. I tried Otezla but could not tolerate it. My Doc wants to me to try Xeljanz. I'm not real motivated to try another drug to make me real sick again. Thinking of trying Turmeric/Curcumin as an anti-inflammatory. I am very discouraged right now as it seems very difficult to find a working treatment. I have missed my nieces wedding and barely made a appearance to my grand-daughters first b-day. My wife thinks I need I need a walker, but I refuse.
Hi @joe-promedio, thank you for sharing your story with us. This must be so difficult and frustrating for you. Dealing with your diagnosis and the severity of it, must be so overwhelming. I can understand why you would be hesitant to try another medication. It can be so hard to find something that helps, as what can help one person, may not help another. There are a lot of alternative treatments out there, I am hoping this article can help you: https://psoriatic-arthritis.com/clinical/alternative-options-managing-chronic-pain. I really hope you can get some relief. Please reach out if we can help you with anything further. Jill, Team Member
My sympathy! Getting your head round this disease is not easy. During my early years I often thought I was my own personal drug guinea pig as one drug after another was tried to reduce inflammation. It took so long. Then eureka! Life became easier, mobility improved. I had really thought I would end up in a wheelchiar. Now I walk my large dog every day. So don't give up on the meds!
This trying out different meds is common. Everyone is different but what is sure is the sooner you treat this disease the better the outcome. The damage done cannot be undone so time with alternative/complementary solutions is a delay that you cannot retrievewhat did they put you on that works.. my dr has me trying all sorts..
Everyone is different! Here in the UK, you must try two traditional DMARDs (disease modifying drugs) before you can progress to the biologics. I was prescribed methotrexate first. Took a while, months! But worked for worked number of years. Unfortunately my liver objected in the end. On to ciclosporin, my body did not like that much either. Then on to one of the new biologic drugs , very new at the time and not yet fully approved, Etanercept. After 12 years in this it became ineffective and I moved on to other biologic drugs.
Fortunately new ones are coming out all the time.
There are two issues to take on board in taking drugs for PsA.Catherine
1. It takes forever to work out if it's working - 3 months unless you're very lucky
2. Yes there can be side effects but many of these wear off/ pass quickly so don't give up too soon!
Patience and persistence is required in PsA sufferers to get initial results....looking back on those years, I wonder how I managed....
im so sorry but keep on trying differant meds, one will work, your giving up... dont... just do it..
