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I feel I need to hide my pain in daily life. Do you do that as well?

  1. Hi , thank you for reaching out to our community. I admire your honesty. I really wish you didn't feel this way, this must be so difficult for you. Living with an autoimmune condition is hard enough, let alone feeling the need to hide your pain. I can imagine this is exhausting for you.

    I am really glad you reached out to this community that understands. I really hope you have support from family and friends as well. While I hope our community chimes in with their personal experiences, I wanted to share this article from one of our advocates who hid her pain for years. I hope this helps you feel not alone. We are here for you.
    Jill, Team Member

    1. thank you for posting this Jill.
      Yes I have an academy award-winning acting that I have to put on every day that's very exhausting.
      No one at all ever believes and you get peanut gallery comments saying that you're faking It or that you're a hypochondriac or they'll say yeah I'm exhausted too.
      It's very depressing.. also leaves you full of guilt and anxiousness when you're having to lay on the couch to recuperate when you have a million things to do and no one to help you.
      Prayers for strength for All. JDay FL

    2. @CommunityMember513, ughh I can hear how exhausting and upsetting this is for you!! Sending you a very gentle hug. Please reach out when ever you need, we are here for you. Jill, Team Member

  2. Hi , I echo everything that Jill said. It must be hard to mask the pain, but it can be equally as hard to share such a vulnerable part of yourself with others.

    I wanted to let you know that I shared your question with our community members on Twitter. There were quite a few people that could really relate to your question. If you're interested, you can view their responses here:

    Please know you're not alone!

    Minel (Team Member)

    1. Thank you for your reply Jill.Brodie and minelcannucciari!

      I don't look sick. It seems like I'm attention seeking or I don't want to do my work. And... sometimes I don't want to believe it myself.

  3. sonnj, I feel the exact same way as you. When I am unable to work I feel like I am lazy, and now, when I get together with friends, I am always the one leaving first.

    1. I’ve been bedridden off and on the past few years. It was very difficult to adjust to not working. On the days I feel lazy I try to remind myself that I’m giving my body the rest it needs, and preventing damage from pushing too hard. My spouse and I joke that I’m practicing my blinking and breathing 😅Humor help get me through.

    2. I also struggle with those "unproductive" days. I get mad at myself for spending the day on the couch. I am starting to learn that I need those days so my body can recover.

  4. Nope I can’t hide whats right in everyones face.

    or create an account to reply.