Hello @brightzyd and welcome to our community. There are so many wonderful people here and I'm sure you will find plenty of support and understanding. Unfortunately, I have to say that ongoing fatigue, despite "effective treatment" is a common complaint and a personal arch-nemesis of mine too. My fatigue (and possibly yours) can come from a variety of places including being part of the disease itself, a side effect from the medication, or simply a storm front of weather coming thru. Or sometimes, even a delightful combination of all of them 😉
One of the most difficult parts of fatigue is deciding whether to try and battle through it or to just embrace it and let your body rest. Balancing the needs of your body with the needs of life in the real work will come in time. My best advice to is to pace yourself and find the combination of movement and rest that works for you. Over time, we all learn how to listen to our bodies, and find a pace or routine that works best for you. Be gentle with yourself as this takes some time.
Some newer biologic medicines such as Tremfya claim to help with fatigue as well, so I really believe doctors and pharmacists are doing a better job of listening to patients concerns about fatigue. Unfortunately though, it does seem to be farther down the list of concerns than joint or skin issues.
I'm sure others will chime in soon as fatigue (and our attempts to combat it) are common. In the meantime, just please remember to be gentle with yourself as you find your post-diagnosis path and remember we are here to support you in any way we can. -Leanne (Team Member)