Hi all. I'm new here. I just got diagnosed on December 7th. I think the reason it took so long is that I had had 6 different stress fractures in my feet over the last year and so my swollen toes were put down to bone marrow edema and stress reaction. I saw 5 different doctors (podiatrist, general practitioner, ortho surgeon, naturopathic doc, and finally a rheumatologist after my left wrist started aching). Three of my toes, including one that has never been fractured, are still fairly sausage-y. These toes are my main symptoms other than persistent plaques, and a general ache and fatigue upon occasion.
Current hesitations and treatment history
The rheumatologist wants me to start methotrexate; I'm not too keen on the idea. I've intensely restricted my diet
and started taking vitamins
(multi, B, D, calcium, fish oil, folate as methylfolate), drinking turmeric tea
, bone broth, and apple cider vinegar (with honey, cinnamon, hot water), and indulging in regular epsom salt baths. Although all of this has helped decrease the swelling a bit, and I know 3 or 4 weeks is not a super long time, my toes still don't show the kind of progress I would like.
What's your experiences with dactylitis?
So, question: has your dactylitis
ever completely gone away? How long did it take? What did you do to manage it? Thanks so much for the support!