PsA Without Much Psoriasis

Hello!
I was diagnosed with PsA about 3.5 years ago when I had Achilles’ tendinitis and my toenails were discolored or coming off. After xrays and blood tests, it confirmed it. But apart from my nail beds, I don’t have any psoriasis anywhere. I suffer with my heels and now my shoulder, occasionally my fingers. My lower spine and knees have osteoarthritis apparently. It’s hard. I’ve had an addiction to cocodamol as I can’t tolerate any anti-inflammatory tablets. But I only have 2 or 3 a day now. Jointace and Flexiseq gels are brilliant. I also have diabetes and recently, high blood pressure! I’m falling apart! Being single with 2 autistic sons is bloody difficult and I struggle with anxiety and depression, probably because I get no respite and little or no help. This heat makes it much worse too.
Well, I expect that’s cheered you right up!
I’m glad I found a site where people will understand about PsA.
Luv, Melanie x

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Comments

View Comments (5)
  • Marge
    1 year ago

    So sorry for u. I have had psoriasis since I’m 7 when no one knew what it was. It was a time for bullies to get me.I suffered in school. I was like a scale moster. It got so that they told us to keep me out of school. I still went and stayed by myself. My one sister is my twin. She is fine….out of 9 children it was me. I grew up with no friends with no one . U say it Ive had it.
    ive been through hell for most of my life. IBS back surgery. Spine surgery .leg surgery gall bladder colon removed no one cares now I’m suffering with Arthritis. I have not seen a Dr yet but my hands and feet legs hole bodie no sleep .can’t walk good. No medication except for pain killer so I can stop hurting. 2 a day . so my life has been bad. Why I’m alive I don’t know.

  • VickiN moderator
    1 year ago

    Marge, is it possible for you to go to a Rheumatologist? I wish you weren’t in pain. Have you found anything that helps you cope better? Please let us know if there’s any info you’d like us to find for you, and of course we’re always here as a listening ear. Sending warm wishes,
    -Victoria, Community Moderator

  • alakat
    2 years ago

    I was diagnosed with Psoriatic Arthritis, Sjogren’s and Raynaud’s Syndrome in December of 2016. Prior to that, I was diagnosed with spinal stenosis and anakylosing spondylitis, and two dislocated discs (L4 and L5) due to osteoarthritis. My rheumatologist is wonderful. She takes time to explain things to me and really listens when I tell her something. I’ve been fortunate that the medications that were prescribed manage my symptoms most days. I’m on Plaquenil daily and Cimzia Lyo injections monthly. I do not have psoriasis, for which I am grateful. I’m 69 and my husband and I run a business so I work almost everyday. I fight fatigue everyday, and the pain in my back prevents my doing things I need and want to do. My husband is solicitous of my back, but doesn’t understand why I have no stamina. I think I must be more fortunate than a lot of you because I have a wonderful doctor and I have responded well to my meds. I just wish I had more energy. I’m thankful I found this site, so I don’t feel so alone with this disease.

  • VickiN moderator
    2 years ago

    alakat, you are certainly not alone here! I’m so happy to hear that you have a caring and understanding Rheumatologist. Fatigue is such a big part of PsA, and it’s not small hurdle!
    https://psoriatic-arthritis.com/psa-symptoms/fatigue/
    We’re very thankful that you found us too. Please stop by anytime!
    -Victoria, Community Moderator

  • Casey moderator
    2 years ago

    Hi Melanie! Thank you for taking the time to share your story with us! I’m so sorry to hear you’ve had to endure so much. Please know we’re here for you through everything, even when you just need a friend to talk to. You are truly a warrior to be battling all of this on top of being a single mother to two autistic children. I am amazed. I’m so sorry to hear you’re struggling with anxiety and depression, and thought you may be interested in some of these articles, https://psoriatic-arthritis.com/living/living-with-the-anxiety-from-psoriatic-arthritis/ and https://psoriatic-arthritis.com/living/changing-my-tune-emotional-health/ Hopefully, these will remind you that you’re not alone, and that many of our community members are experiencing very similar emotions. We hope you’ll continue to reach out to us, and want you to know that we’re so grateful to have you in our community! Sending gentle hugs your way! -Casey, Psoriatic-Arthritis.com Team

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