Explaining to friends that you don’t look ‘that’ ill

Over many years of treatment for PsA, we have all heard the comment, “Well you don’t look that ill.”

Sometimes friends will say it as a way to cheer you up, meaning you look ok today, but sometimes it seems a little judgemental like you are exaggerating your illness.

I once explained to a friend that, in order to look ‘not that ill’, during the course of a year I need to:
Inject 1040ml of methotrexate,
Take 312 folic acid tabs to cope with the side issues,
Swallow 2190 Tramadol and 1460 paracetamol to help with the pain,
Have 730 Arthrotec pills for swelling, and finally 730 Amitriptyline tabs to help me sleep and relax my already shredded muscles, ready for the next daily battle to commence.

Next time a friend says you don’t look ‘that ill,’ just work out your yearly meds and tell them what you need to put into your body just so you don’t look ‘that ill’,

It’s amazing how quiet they tend to go lol.

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Comments

View Comments (5)
  • firTree
    5 months ago

    Very eloquently put

  • Ava
    6 months ago

    ps oops. sorry, did it again, too many meds today. I should have written … it’s the best they can come up with, sigh…

  • Ava
    6 months ago

    Loved your story. But ‘you look well’ doesn’t cheer me up either. I think it’s just about making the other person feel better and it’s theist they can come up with. I laugh (because that’s what I do) and joke about how my now cortisone inflicted moon-face smoothes out my wrinkles!
    Your story made me stop and count my meds, it is a scary number. It’s also perfect to have the information up my sleeve for the days my frustration gets the better of me.
    Ava

  • martin author
    6 months ago

    It is actually frightening when you look at your yearly meds.
    My doctor (has a great sense of humour) told me that the amount I take in a year is enough to fatally overdose 12 people if they divided them up and took them at once !! Now thats scary lol

  • Ava
    6 months ago

    oh yes very scary! I remember the days when I thought taking a supermarket brand headache tablet was a bad thing to do… How I’ve changed! 🙂 Ava

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