Coping Each Day

From my first day of school to being told I could not attend school at 5 years old, I knew I would be a fighter in having psoriasis and psoriatic arthritis. I have truly had a battle from day one with this disease. Never would I imagine the fight that I had to fight. I had to take on the challenge and complications of being in pain and learning how to take care of my health. When I finally got diagnosed 10 years ago with psoriatic arthritis I felt like “bring it on.” I will make it through this. After all, I have been living with psoriasis my whole life, how hard could this be? I really didn’t know the fight I would have to face for the rest of my life.

Finding the time to cope

I am a very busy person. I work a full-time job. I am a wife, mother, grandmother, and a mentor to a lot of people. I am a blogger and I write articles about my life. My time is very important and valuable to me. I allow my self-time for my workload. I try not to take on a lot of projects anymore. It used to be easy to do extra stuff, but I’m finding it harder and harder to cope. Sleeping for me is one of the biggest coping skills. I’m up all hours of the night wincing in pain. With psoriatic arthritis, it’s hard to sleep, but you need sleep to cope. On days that I can’t sleep I try to at eat right and walk a little so I can have energy though out the day.

I have tried many medications over the years, most never worked, but I never gave up hope. I finally got some relief when the biologics came out. They have made my life so much easier. I’m not pain-free but I can manage from day to day and I have a better quality of life. I also take pain pills, which takes off the edge. If you are on any kind of medications, make sure you take it when you are supposed to. Consistency is the key.

Coping is key

I have my share of emotions daily. I try to be happy, but sometimes it’s hard. I often ask myself, how can I become more emotionally resilient? I have been a bright shining star my whole life and I want to continue to shine in other people’s lives. I start by talking with someone who understands both psoriasis and psoriatic arthritis and the depression it can cause. Also, try talking to a friend or join a support group. This really helps. You need to talk to someone who understands your daily struggles and what you are going through.

Thanksgiving is right here and sometimes we must deal with a lot of family and friends. We want to put our best foot forward and do our best. But unfortunately, when pain and fatigue kick it, you can’t be all you want to be. I have cooked Thanksgiving dinner for my family every year for the past 40 years. I’m not able to do this anymore, which also makes me very sad. I now go to families houses for dinner. When you have psoriatic arthritis, you don’t just wake up one day and say oh the holiday is here. I want to be comfortable and not in a lot of pain when I’m around family and friends. I think they understand. I will stay in the fight and stay strong.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Psoriatic-Arthritis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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