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Frustrated, Fatigued, and Fighting for Pain-Free Days.

Frustrated, Fatigued, and Fighting for Pain-Free Days

Psoriatic arthritis (PsA) is an inflammatory condition closely related to and frequently co-occurring with psoriasis. Both PsA and psoriasis are chronic life-long autoimmune conditions. While psoriasis primarily affects the skin, PsA has highly variable symptoms that present in different patterns with different patients. Among the most common symptoms are pain, swelling, and stiffness of the joints; inflammation of ligaments and tendons; and fatigue.

Psoriatic Arthritis In America survey

Health Union conducted an online survey of people with PsA, titled “Psoriatic Arthritis In America 2016,” to identify the range of challenges and treatment experiences of people living with PsA. A key finding of this survey is that the process of getting a PsA diagnosis is often frustrating and lengthy. Most people with PsA experience multiple symptoms over a period of years before they are properly diagnosed.

In the majority of cases, psoriasis precedes PsA, with PsA often developing within five to ten years after the onset of psoriasis. However, in about 10% to 15% of patients, PsA will develop before psoriasis.

psoriatic arthritis infographic

The Psoriatic Arthritis In America 2016 survey was conducted online between June 20 and July 27, 2016. The survey gathered insights from 511 individuals who were diagnosed with PsA. Of the 511 people who completed the survey, 64% were also diagnosed with psoriasis. To be included in the final survey results, individuals reported they were diagnosed with PsA by a healthcare professional, and they currently lived in the U.S.


  • Koffegurl
    3 years ago

    DebbieAlvarez, first, I’m so sorry that you are suffering. I’d like to suggest, also, joining a support group, maybe on Facebook. I’ve found that the info, recommendations, support, and empathy I get from these groups helps immensely.

  • Casey moderator
    3 years ago

    Great suggestion, Koffegurl! It actually reminded me to post the link to our Facebook group on here for anyone interested in joining us there as well! You can find us on Facebook here,
    -Casey, Team

  • DebbieAlvarez
    3 years ago

    Thank you all for all you do. Without this organization I would still be searching for an answer. I have a lesson in the Pons of my brain stem. I suffer from pain in my joints. Hips knees shoulderselbows ankles fingers toes neck and spine. My nails are pitted with white scars and peel till they bleed. My wrists abd hands ache and swell. My thumbs cramp. My feet burn and big toe throbs. I get the blisters that break bleeding and scar. My heart for no real reason started missing up to 3 beets in a row. I had an oblation where the burned the dead cells that were dead. I now take flecinude to keep the rythem. I get sores in my mouth and I have hypothyroidism. I do yoga and try to keep stretchedoing. I have dad a fusion in my neck to relieve the upper neck pain. Headaches come and go. My spells seem to be set off by storms. I need advice and a place to travel to so I can get a treatment plan. My family Dr. Has diagnosed me with fibromyalgia, hypothyroidism and poly arthritis. He had never heard of psoriatic arthritis. He did research and found my symptoms to match all symptoms. Please I fight the fatigue and pain. I do not take pain medication because I am afraid the pain will get so bad will need it more in time. Spells last 4 days and come back within 1- 2 weeks or when storms and stress is encountered.

  • Casey moderator
    3 years ago

    Hi again, cantstandlong! I’m so sorry to hear this! How frustrating! Please know we hear you, and know that you’re speaking from experience and from the heart. I’m also sorry to hear about your difficulties standing! Please let us know if there’s anything we can do. We appreciate you being here in the community! -Casey, Team

  • cantstandlong
    3 years ago

    I have the same thing (side effects and I have seen 4 different doctors and they don’t seem to care about what I have to say they don’t believe that I just might have psoriiatic-arthritis because they don’t see the placpsoriais..I had prorisas in my scalp for 25yrs.until I started having children and it spread to my feet. I couldn’t stand on them for long periods of time because of the lumpy and cramped feet and ,legs. The doctor’s seem to think that I am making all of this up.

  • Rebecca moderator
    3 years ago

    Debbie – thank YOU so much for your kind words and for weighing in. I am so sorry it took so long for you to get diagnosed and are dealing with SO much fatigue and pain – please know that we are *always* here for you. Please keep us posted on how you are doing –

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