Does anyone have SAPHO syndrome and PsA?

Hi , thank you for your question! I hope other community members chime in with their experiences. I've shared it with our members on Twitter & Facebook but came up a bit short on anyone who's had both of these conditions. I think folks largely seem unaware of SAPHO syndrome since it is a rare condition. Have you looked into SAPHO syndrome-specific support groups? They may have more folks with SAPHO & PsA. Generally speaking, unfortunately, it is not uncommon for folks with PsA to also have other chronic conditions as well. Here's some more information on that if you're interested: https://psoriatic-arthritis.com/living/new-symptoms-comorbidities/.

I hope you're able to get more answers!

Best,
Minel (Team Member)

I know this is an old post, but before getting diagnosed with PsA, one of the derms I went to suspected that it was possible I had SAPHO. Have you had any updates since then?