Hi everyone, I'm new. I see nobody has been here since March? It's now May 2,2017. Anyway I'm Gail. I was recently fx with psoriatic arthritis like lat year. I also have Lupus and Lupus pneumonitius , which affects my lungs and I need 02. I have 02 year around. I'm in the hospital often bc I get pneumonia. But I've been ok this past 6 months. My doctor has me on a immune suppressant for both Lupus and psoriatic arthritis. The Lupus one seems to be working but the SPA one seems to not be working yet. She said it will take several weeks maybe even a few months UHG!!! In the meantime I have extremely bad neuropathy in my feet, sometimes in my hands. But my feet are so bad I'm up most every night. I can't take it. My feet feel like they are burning, or ice cold, I have to feel them so I can tell. And I still can't really tell. Crazy. They swell and I'm still breaking out on my hands and feet. I've tried everything from coconut oil to lavender oil on my feet to turmoil and hot oils. Ibprophen to tylonel 3. Nothing works so I end up just about crying all night long.
Besides all of the other pain my back shoulders and neck.
If anyone has any ideas please help? Thanks.
Love Gail.