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Newly diagnosed PsA without Ps

Hi, I'm Savannah, 38, in Canada. I was diagnosed a week ago with PsA. In the last 6 months I have experienced a huge influx of symptoms that lead to my diagnosis. In February my Dr had me stop taking ibuprofen, which I had been taking heavily for pain in my back/nerve pain. Soon after I started to really feel pain in the balls of my feet. I was concerned I may have developed stress fractures as I am an obese person. Then started to get some pain and redness on my pinkie toe of my left foot. My right hand started to swell, the joints in my fingers were very swollen, I had significantly reduced strength in my hand. I struggled to hold my plates, open door knobs, lock my door, start my car. I finally convinced my Dr to do xrays and it confirmed arthritis in my hands and my feet. Then one Tuesday, March 14th, I went to sleep at 1pm woke up to go to work at 9pm and the 2nd toe on my right foot and swelled up and was red. I had no idea what was going on. I saw my Dr again on the Friday and he decided to do a test. Gave me prednisone for a week. Within 24 hours the pain in my feet was gone. I could run up and down the stairs, I was dancing around because it didn't hurt. The stiffness and swelling in my hands went down. It was great! But started to get side effects of the prednisone after 5 days so had to cut it short. Within a few days the pain and swelling were back. My Dr then referred me to a Rheumatologist. It took about a month to get in to see her. The initial appt was via video and she said at the end that she expected it would just be related to my weight. Always a gut punch when Drs say that. I saw her in person about 4 weeks after that initial appt. She looked me over, by this point I know have redness and swelling in 3 toes on my right foot, redness on the 1 toe but noticeable swelling in the big toe joint on the left foot. My right hand has significant swelling and some noticeable joint deformation. She tells me at the end of the appt that I have fibromyalgia and she suspects PsA with Dactylitis. I talked to her a week later after more blood work, and she confirmed the diagnosis. I was very surprised as I don't have Psoriasis. Extremely sensitive skin, gets dry easily but that's it. But she said it can happen after or not at all. I started on Sulfasalazine. So far no major side effects except 1. And it is one I am struggling with so much.

The sun! I have the pale skin and freckles of a ginger (thank you so much dad) and while I actually tan reasonably easy, right now my skin is burning with minimal exposure. Like just going to and from my car and driving around I notice an increase in redness on my skin. I feel the heat even more so then ever. I have always been heat sensitive, but I feel like its been kicked up so much now. I never liked the sun or the heat much anyway, but I am at a loss as to how to function when my skin is proving to be so sensitive. My garden is small but is such a mess right now because I can't go work in it unless it is a grey cloudy day. Or at night. I work nights so that helps, but I miss my garden. I feel a huge sense of loss about it actually.

So long story short, any suggestions or tips to deal with the sun, and dealing with the loss of what is the normal would be great.

  1. Hi , welcome to the community. We're glad you found us. That is a pretty fresh diagnosis and it sounds like your PsA symptoms all came on fairly quickly. Feeling a sense of loss is completely understandable. PsA changes our lives in so many ways and it can become very overwhelming. I think the only thing that's helped me with this feeling is time. I don't know if you're familiar with the five stages of grief, but they apply to coming to terms with a chronic illness: https://psoriatic-arthritis.com/living/newly-diagnosed-whats-next I know this doesn't really help in a practical way, but for me, knowing that what I was feeling was "normal" and will likely pass eventually really helped.


    Regarding the sun - that is a tricky one. I developed some kind of reaction to the sun this year, so I can empathise. I bought a long-sleeved, white linen dress to try wearing out in the sun but I haven't done so yet. I've mainly just been staying indoors when it's very sunny, which is not ideal but it's better than my skin getting inflamed and sore. Here's an article from our lovely Cynthia with some advice for dealing with PsA medications and sun sensitivity: https://psoriatic-arthritis.com/living/medications-sun-sensitivity I also did a quick search of our lupus community and found the following article that might be helpful: https://lupus.net/sun-safety Are you due to check back in with your rheumatologist at some point about how you're getting on? Speaking of your rheumatologist, I'm very sorry that she was initially so dismissive because of your weight. Unfortunately, you're not alone in this experience. I sincerely hope that she felt some remorse when she realised that you are suffering due to an autoimmune disease.


    I hope others will stop by to share their experiences and advice with you. Please keep us updated on how you're doing if you can, and remember that we're all here for you on this journey. Gentle hugs! 💖 -Catherine, Community Moderator

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