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Insurance

Really I’m just here to vent to a community that will understand. I’ve been on Humira for almost exactly a year. I previously failed on NSAIDS, and was taken off Methotrexate after about two years due to elevated liver enzymes. When I was discussing biologics with my MD, I made sure to check what was covered/preferred on my insurance. Humira is Tier 2 (no biologic is Tier 1) but still required prior authorization. Now, I am a pharmacist so I know exactly what all that means and how it works. The PA was approved and I started therapy last April. Almost immediately felt better, although it did take a full 6 months to see the full benefit. I’ve had less pain, joint swelling, and fatigue than I’ve had in YEARS. I did miss a dose (my fault, I misfired the pen) in December and it set me back a bit (had to go back on steroids, yuck) but overall I’ve had a lot of improvement. Since it’s been a year, the prior auth expired and needs to be re-approved. Well I came home last night to a letter from my insurance saying they had DENIED the PA. I am FURIOUS! Per the letter, they didn’t feel that my MD indicated that I had improvement in symptoms. Are you freaking kidding me?!? I feel the best I’ve felt in years and that’s not improvement?!? Being a pharmacist, I’m pretty jaded about insurance companies but this is just maddening. Of course, the decision is being appealed by my MD (the specialty pharmacy I use is pretty great, they are facilitating). I also called and gave them an earful last night and they are going to re-review the decision as well. Overall I feel like I have a pretty mild case of PsA but I’d certainly like to keep it that way! Grrrrrr. Thanks for listening.
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  1. How maddening, ! Imagine if you were someone who didn't understand the system and didn't appeal. Have you missed a dose now already? I hope the appeal moves quickly and that you are back on Humira without missing a beat. I am upset for you! Thinking of you. - Lori (Team Member)

    1. I haven’t missed a dose yet. Serious kudos to my pharmacy because they started the new PA process about 3 weeks ago and have really been on top of things. I have a dose for this week, so I have some time to get it straightened out. It’s just suuuuuper frustrating, and honestly I don’t know how anyone navigates the mess that is insurance/approvals/appeals without the knowledge I have. We need massive reform regarding insurance/pharmacy benefit managers, but that’s probably a topic for a separate forum.

      1. absolutely, do you have any contact information? I’m definitely interested in an advocacy group. I try to reach out to state, local, and federal lawmakers regularly regarding the increasing costs of healthcare. I feel like, as a pharmacist, I have a pretty good idea about how/why/where the breakdowns happen!

      2. contact Audrey Riggs at the NPF she can get you connected to the right advocacy team. Thank you. I think you will be a great person to help with this.

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