I hope you are as well as you can be.
I promised to give an update on my progress so here goes. 😊
I had some stomach issues in the past few months so had to have stool samples checked for IBD.
The first sample came back with a reading of 110. The scale is under 50 is normal, between 50 and 150 is elevated but classed as a “grey” area and can be called inconclusive, over 200 is high and an indication of active IBD issues.
As mine was elevated I was asked to do a second test and it came back as under 30, which is apparently as low as they can measure. So all in all, quite good news and a relief.
In between the tests I actually realised that I was eating a lot of cabbage, as cabbage is healthy, right?
Well despite being good for you apparently it can also cause a lot of digestive issues.
I also, voluntarily decided to try a gluten and lactose reduced diet.
After a week or so I noticed only a very minor change in my stomach issues.
I discussed the test results with my GP and asked if he thought it was OK to try a strict gluten free diet, as I have seen many people complain that wheat makes them feel awful and has been linked to inflammation. (I thought I would try gluten first as it seemed an easier and be to start with compared with lactose, or both).
So I’ve been strictly gluten free for around 10 days now and I have to say my stomach is definitely a lot better. I know it can take a month to see a real difference and to allow any healing to take place but so far it does seem to be helping already.
I have however developed other symptoms. The insides of my arm/elbow joints are agony at times. Sometimes I seem to not even be able to pick a jug of milk up.
My back, both upper and lower, is very stiff an painful.
My inner thighs are hurting a lot of the time.
My neck feels weak and I am suffering from real fatigue at times.
My usual symptoms of very sore hands and feet are still there and the worst they have been since I started Enbrel, 6 years ago. (I thought it was 7 but my rhumy nurse confirmed 6)
She was very good when I finally got my appointment at the hospital and was shocked it had been a year since they saw me last. She did confirm that it could be a case that the Enbrel is not as effective as it first was.
She stressed not to worry and that they had a “cupboard full of wonderful drugs, some I won’t even have heard of” which were her exact words 😊 and that they would find a plan B or C or D for me.
I must remember to take her some chocolates at Christmas 😁
I have a neck X-ray in a week and another appointment with my nurse in 4 weeks to discuss where we go from here.
All said and done it’s quite positive but I have to admit the worsening and new symptoms are getting me down a little at the present time.
Oh well, onwards and upwards, it’s the only way. 😊
Thank you for reading and take care