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Hi, I'm new

I have had psoriasis since I was a teenager. My mom also has it. Its been mostly on my scalp, but I've had a flareups over the years that were in different locations. I am 52.
Last July, I left an organization I had been at for 17 years. I was lucky enough to ask for and receive a severance package and began a job search. I took a new position that required a big move at the end of November. Around November I noticed that my second toe was swollen, red, and warm to the touch. I didn't recall injuring it, but figured I clearly had. I went to urgent care for an xray and of course it came back clear, no break. They said I'd be fine in a week or two, but I wasn't. It continued to hurt and looked angry. It was making walking difficult and shoes too! I kept trying to get some intervention, but now I was relocated to a new state and literally didn't know anyone but my HR relocation coordinator lol. I went to the ER. The doc there was certain it was sepsis. He ordered antibiotics and sent to a podiatrist. I can't get an appt for the podiatrist because there is only one in the practice and he's swamped so they get me in to see an orthopedist. She says definitely not sepsis but asks about diabetes. I'm 11 year post op gastric bypass patient and didn't have that when I was nearly 400 pounds. I don't have diabetes. Things go on like this for several months. I get steroids. I get xrays and xrays. I get a MRI. I get more steroids, which always make me feel good, but never actually reduce the swelling and as soon as I'm done, the pain returns too! Finally, and luckily really considering how everything is shut down now, about 2 weeks ago I'm in seeing the podiatrist again and he's stumped. He says maybe its structural. Maybe surgery? Then he says really to himself, it doesn't make sense its not diabetes, its sausaging of the digit, psoriasis... So I say wait, yes I do have psoriasis. Note that now I have developed achilles tendinitis in the other foot, he's put me in a fancy boot, and my knee in the same leg is also now really hurting. He says I know what this is and asks me to wait. He goes to consult with the only rheumatologist in their practice and she is willing to see me right now. I've already had every blood test I can imagine, so she's got a really complete medical background. She takes a look at my nails and my skin and asks me a ton of weird questions. Long and short, it is psoriatic arthritis and she puts me on Methotrexate injections to get this under control. She didn't want to mess around with pills due to absorption issues I have from the gastric bypass. Just getting the script filled was an undertaking honestly. At any rate, I'd never even heard of this before. She tells me that its not unusual for dx to go like this and that she's even seen patients post surgical solutions! I sure can see how that happens, my doc was talking to me about it. I have had 2 doses so far. I'm on .8 ml weekly. I have zero progress, but I know that its going to take time to have any and my dosage might not be enough yet to boot.

Glad to have found you all!

  1. Welcome ! We're glad you found us too 😀

    You have been on a real journey with this already! Your doctor is right - unfortunately this kind of runaround before getting a diagnosis is not too unusual. Thank goodness you picked up on the podiatrist mentioning psoriasis! I'm so glad you were finally able to get some answers, although I know a new diagnosis can be daunting and bring mixed emotions. How are you feeling about it? Are you getting on okay with the methotrexate so far? Hopefully it'll start to kick in for you soon. I've been taking it in pill form for around 2 years now. It has made a huge difference to my pain levels, although of course we all respond to these things differently.

    Keep us updated on how you're doing if you can, and do reach out if you have any questions or need support - we're here for you! -Catherine, Community Moderator

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