Drugs managing psa
Is there anyone who is positively managing there pea with methotrexate etc.I'm starting the drug route in New year
Psa.
Hi
methotrexate seems to help quite a few in our community. Hopefully you will get some individual responses as well. The best advice I can give is give it a try and see for yourself because we all act differently to different medications. Vickie, Team Member Hey
! I'm doing pretty well on methotrexate. I've been on it since April 2018. It's made a huge difference to my pain levels and I also have more physical stamina than I did prior to starting on it. It took some time to kick in for me though - somewhere between three and four months to start noticing a difference in my symptoms, and probably six months plus for it to reach its full effect. Side effects-wise, I've been quite lucky - some mild nausea at the start which has more or less disappeared as time has gone on, and I feel a bit "groggy" for around 36 hours after I take my dose. I take the methotrexate with my evening meal so that I'm (hopefully) asleep for a chunk of that time. We're all different though. If you haven't done so already, it's definitely worth having a browse of the forums here - lots of our community members have shared their experiences with various treatments. Is it methotrexate that you'll be starting on in the new year? And how are you feeling about starting treatment? If you have any questions about my personal experiences, please feel welcome to ask. Warmly, -Catherine, Community Moderator hello yes I've got my appointment for 24 Jan .I tried to test myself with walking outdoors today my spine hip legs and knees are absolutely so painful I could cry.also the mornings nightmare over my shoulders and back of head.feeling shattered all the time and housebound nowx , oh bless you. I'm sorry that you were in so much pain with walking outdoors 😢 It's hard enough dealing with the pain, but these moments that highlight just how badly affected we are can be extremely difficult. I definitely hear you on dreading the MRI results too. It is scary finding out how this disease is impacting our bodies, especially when we feel so bad with it already. I truly hope the methotrexate will help you. I was spending most of each day in bed before starting on it, so it has made a tremendous difference for me. It's also worth remembering that there are plenty of medications to try, so if for some reason the methotrexate doesn't make a difference for you, there are other options. You'll likely be prescribed folic acid to take alongside the methotrexate in one way or another - if you aren't, make sure you ask about it at your appointment. Do you mind me asking when you were diagnosed? And how long you've been suffering with these symptoms? Hoping you're not feeling too rough today after that walk. I know these kinds of activities have the potential to knock us out for a few days afterwards. Gentle hugs! -Catherine, Community Moderator
Ps I'm dreading seeing the outcome of spine mri the hands feet chest feet but i can hold on to a glimmer of hope I guess since it's worked for you.?I've been scaring myself watching psa! videos YouTube as well
oh dear, I'm sorry to hear that you've been scaring yourself with YouTube videos. It certainly can be scary waiting for results of a test. I am crossing my fingers that you get some good news from the spine MRI, but please know that we are here for you! Sending you gentle hugs. -- Warmly, Christine (Team Member)
