Co-morbidities
I shared my story before and read others. It seems when one’s wiring goes off the wall you end up with an assortment of issues. I have more doctors than I hoped I never would have but I do have a primary doctor who reads all the reports from other specialists and discusses the issues with me. I have been dealing with these for 36 years. It seems that every year a new issues pops up into my life. I was able to work until I turns 70. I found that working helped making me get out of bed and deal with issues. Some days I just laid in bed crying because of pain but I got up the next day and continued on. Do you know that PsA is a disability and your company has to adapt to your needs.
, thank you for sharing with us all. Unfortunately, there are quite a few comorbidities that are associated with psoriatic arthritis. For anyone interested, we have an article which looks at a few of them: https://psoriatic-arthritis.com/related-conditions-risk
I'm glad to read that your primary doctor is on the ball and keeps up with all of the reports from your specialists. It can be exhausting dealing with multiple health conditions and all the different doctors. Are you treating your PsA with anything at the moment? And how have you been managing since retiring? Hoping today is kind to you! Warmly, -Catherine, Community ModeratorI am about to have surgery again On a July 14 on my foot as the spacer in the joint has decided to take leave and now sticks out of my toe. Third toes needs to be fixed also as part of my PsA is destroying my joints. I will also be having bunion surgery as I do not want to go back a couple of years again. I would rather just have it all done at once which will hopefully allow me to once again walk without pain. Unfortunately because of the surgery I will need to delay my infusion of Remicade two weeks. I am interested in how I will be dealing with this delay. , I can completely understand not wanting to go back for more surgery in a couple of years. I can see in your other comment that you've already had quite a few surgeries due to PsA. Sincerely hoping that everything goes as well as possible on the 14th.
We have had a few community members who have had to take a break from their treatment due to surgery, infections or other conditions. There seems to be mixed results - some people end up in a flare and others don't notice too much of a difference. I had to skip two doses of methotrexate a few years back due to a chest infection. My PsA was completely fine during this time but my psoriasis did end up flaring a bit. I would be curious to hear how your body copes with the Remicade delay, especially as you mentioned in your other comment that you can feel when it's time for your next infusion. Hopefully you wont have too much trouble!
We're wishing you the very best for your upcoming surgery and recovery. Please keep us posted on how you're doing if you can. We'll be thinking of you on the 14th. Warmest wishes, -Catherine, Community Moderator
I am receiving Remicade every 7 weeks and 8 pills of methotrexate every week. I take Baclifen, cymbalta and gamapentin every day.
, we appreciate you sharing your treatment regimen here. I take methotrexate too - six pills currently. I do find that it helps with the pain and I have more physical stamina since starting it. Do you feel that your treatments are working well for you? Thank you again for sharing. Warmest wishes, -Catherine, Community Moderator
Right now I believe my regiment is working as well as it can. I don’t know if I originally said that I was on Humira for seven years and it worked great then it just stoppedThen I went through Enbrel, and a few more but none worked as well as the Humira. Now on Remicade I know when it’s time for my infusion as the week before I seem to have less energy. But the six weeks after I can do more. The fibromyalgia is really causing more problems at the moment than the arthritis in my energy level. I am scheduled for foot surgery on the 14th as another joint in my foot has decided to stop working. This is the 2nd joint replacement in my right foot. Along with plantar fasciitis in that foot walking has hampered my ability to get some outside activity. I have had a number of surgeries as a result of the PsA including a joint replacement in my left thumb. But I still keep ticking as I am not willing to give up quite yet.
My comorbidities are, High BP, Stroke, Small Vessel Brain Disease, tricky gut and now unusual hearing loss in one ear, low frequency vs age typical high frequency. PsA hearing loss 60% vs 8.3% general population hence balance issues.. Eeek!
