Hope you’re as well as best you can be. Always sounds a bit daft when you say that but ....
I’ve been on Enbrel for years now and at the start it was a real life changer for me. It made me forget I had PsA and I just got on with life. However, in the past few months I’ve felt as though my weekly injection isn’t quite getting on top of it as much as it did.
I sort of feel like I did before I was diagnosed, with some symptoms seeming worse than they were.
I have pain in my hands, legs, back and arms. The arms feels more like tendon than joint and it’s the same on both arms. If I’m holding anything up for a few minutes, like a weed burner for instance, my arms are agony when I try to move them afterwards.
Also, and I really don’t know how to explain this well, I just feel so really really ill at times. Brain fog (which I’ve never had before), fatigue that means sometimes all I can do is lie down and close my eyes, and just an overall bad feeling.
I’m not even sure it’s all just PsA but trying to get hold of our hospital to discuss is near impossible at the moment. I’m in the UK.
My consultant left the hospital last year so all I’m left with at the moment is the specialist nurses. They’re great but I can’t even get hold of them at the moment. They don’t answer the phone and there is a message saying you cannot leave a message at the moment. The answerphone is switched on intermittently between 8:30 and 15:30. It seems if it’s not COVID then hospitals aren’t really interested at the moment.
I’m going to keep trying though as I’m really feeling like I can’t take a lot more of feeling like this. I imagine they may switch to a different biological? Anybody been through similar?
Take care all