What is 1 thing only another person with PsA would understand?
When it comes to living with psoriatic arthritis, unless you have another chronic health condition, it may be hard for others to understand.
What is 1 thing only another person with PsA would understand?
Share your experiences with us in this forum thread.
One thing that a person with PsA would agree is that diet, sleep and anxiety play a tremendous role in how productive we are, learning to listen to our bodies has helped me have more good days than bad.
Hi
! Welcome to the community - we're so glad you found us 😊 I actually haven't found any dietary changes helpful, but I know that we have lots of community members who have. I do still try to eat a healthy, balanced diet, just because I know that's what is good for my overall health. Perhaps can let us know if there's a particularly way of eating that they find helpful.
If you're interested, we do have a couple of articles on diet and PsA. The first looks at the role of diet and nutrition in PsA: https://psoriatic-arthritis.com/psa-affects-health/food-nutrition-diet-link and the second looks at a few diets that may be able to help us manage our PsA: https://psoriatic-arthritis.com/living/diet-help There's also an interesting forum discussion on diet and PsA: https://psoriatic-arthritis.com/forums/diet I hope these are helpful. Have you had PsA for long? And are you treating it with anything at the moment? Warmly, -Catherine, Community Moderatorflare ups
The constant pain, tiredness, lack of sleep
I was recently diagnosed with with this and one thing that’s interesting is I’ve been chronically tired at least half my life and I’m taking Adderall for ADHD, which helps me in the mornings, but I find that’s interesting that this is part of the problem with having psoriatic arthritis., I'm sorry that you suffer with PSA. Stress is a factor that definitely affects us with pain. It is one of the things that will put us in a flare up quickly! I did have to have a talk with my family doctor about how living with this illness is affected by stress and the everyday things that are easy for others to do, that we can't. It's frustrating and everything was stressing me out. I was grouchy all the time. After talking to my Dr. I chose to begin taking and antianxiety medication, and it is very helpful. I don't worry about what others say, it has helped. It may be something to think about if it would help to talk to your Dr. about an anxiety medication. I wish you the best.
Take care
Fatigue is a constant 24/7 battle. No one but a psoriatic disease sufferer would understand
yes, fatigue is the worst for me too. Someone else who understands is my husband who has MS. Fatigue is also his worst symptom. fatigue really can be the worst for a lot of people here! Although it stinks that both you and your husband are dealing with chronic conditions, it sounds like it might be nice to have a partner who truly understands. Also, as you mention he has MS, I just wanted to share our sister community, https://multiplesclerosis.net/, if you weren't already aware of it. Wishing both you and your husband a gentle day! -- Warmly, Christine (Team Member)
One thing that someone would not understand who doesn’t have PsA, is what you deal with on a daily bases. The pain & side effects from the medication you take to treat it. Not a lot of energy and fatigue just wanting to sleep in hopes it will disappear when you wake up!
absolutely, we hear you! It is a very challenging thing to have those around you not understand the daily difficulties of living with PsA. I hope this community can be a place you can come to for support and understanding, because the people here get it. Sending you gentle hugs. -- Warmly, Christine (Team Member) , you nailed it. People don't understand. And your absolutely right, the side effects and pain is bad. My doctors have had to change my medication so many times because of side effects. Thanks for sharing. The fatigue is not good either. What do you do to combat that part? Diane (Team Member)
