What is 1 thing only another person with PsA would understand?
When it comes to living with psoriatic arthritis, unless you have another chronic health condition, it may be hard for others to understand.
What is 1 thing only another person with PsA would understand?
Share your experiences with us in this forum thread.
One thing that a person with PsA would agree is that diet, sleep and anxiety play a tremendous role in how productive we are, learning to listen to our bodies has helped me have more good days than bad.
Hi
! Welcome to the community - we're so glad you found us š I actually haven't found any dietary changes helpful, but I know that we have lots of community members who have. I do still try to eat a healthy, balanced diet, just because I know that's what is good for my overall health. Perhaps can let us know if there's a particularly way of eating that they find helpful.
If you're interested, we do have a couple of articles on diet and PsA. The first looks at the role of diet and nutrition in PsA: https://psoriatic-arthritis.com/psa-affects-health/food-nutrition-diet-link and the second looks at a few diets that may be able to help us manage our PsA: https://psoriatic-arthritis.com/living/diet-help There's also an interesting forum discussion on diet and PsA: https://psoriatic-arthritis.com/forums/diet I hope these are helpful. Have you had PsA for long? And are you treating it with anything at the moment? Warmly, -Catherine, Community Moderator
flare ups
The constant pain, tiredness, lack of sleep
Stress, stress, stress . This is definitely the trigger for me
I was recently diagnosed with with this and one thing thatās interesting is Iāve been chronically tired at least half my life and Iām taking Adderall for ADHD, which helps me in the mornings, but I find thatās interesting that this is part of the problem with having psoriatic arthritis.
Fatigue is a constant 24/7 battle. No one but a psoriatic disease sufferer would understand
well, I sure do and I just learned that this is part of the problem with having this kind of arthritis and Iāve had this problem for a long time and another part is the inflammation. I get inflammation very easily I always have and so I also have undiagnosed ADHD and Iām on Adderall, which helps with the fatigue and Iāve noticed other people are using it for this kind of arthritis. I find that interesting and also helpful.
i feel your pain. I hit 40 this year. I was diagnosed at 35, during the pandemic and its been a roller coaster journey. I am a part time nanny to two young boys and a massage therapist. The fatigue is so hard to explain to people and it gets worse when you are fighting through pain bc you dont want to cancel plans yet again.
I have to remind myself to be kind to myself, to allow myself to take the time off if i need it, to carefully explain to my boys what Iām going through in a way they can understand. Ive found that board games, water toys (like squirt guns and sponges) & art projects are ways to still be involved with the boys but allow me to use less energy and still be present. Wishing you well!
One thing that someone would not understand who doesnāt have PsA, is what you deal with on a daily bases. The pain & side effects from the medication you take to treat it. Not a lot of energy and fatigue just wanting to sleep in hopes it will disappear when you wake up!
absolutely, we hear you! It is a very challenging thing to have those around you not understand the daily difficulties of living with PsA. I hope this community can be a place you can come to for support and understanding, because the people here get it. Sending you gentle hugs. -- Warmly, Christine (Team Member) 
, you nailed it. People don't understand. And your absolutely right, the side effects and pain is bad. My doctors have had to change my medication so many times because of side effects. Thanks for sharing. The fatigue is not good either. What do you do to combat that part? Diane (Team Member)
