I just received my diagnosis last week and I’m still reeling. I don’t know what to do or how to move forward. For me, it took a while to get a diagnosis because of two things: I’ve always had problems. When I was young they called it osteochondritis desiccants and I had a really bad case of Lyme disease wherein the bacteria had made its way into my nervous system.
It has always been hard to tell what symptoms were caused by what. I am actually amazed at how quickly I’ve gone downhill. Two months ago, I was going for long walks, five miles a day. Now, I can barely shuffle along.
Feeling like a burden
My rheumatologist has submitted to my insurance company a request to start me on Simponi Aria
. I am so lost. I am sad, confused, and angry. My friends and family have been amazing. While they are trying their best to offer comfort and support, I feel like such a burden.
I met someone today who has been living with psoriatic arthritis for 10 years. It helped to talk to her because she completely understood everything I said. So much of what she had to say resonated with me.
Looking for support
I am coming here for support, guidance, and advice. All the kind of stuff that only someone who’s been through it can understand. What do I do now? Where do I go from here? How do I get back to living? How can I be proactive about my treatment? What kinda questions do I need to ask?