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Those Strange PsA Symptoms…

Those Strange PsA Symptoms…

We know that psoriatic arthritis is so much more than just chronic inflammation and joint pain. While swollen, painful joints are the primary symptoms of PsA, there are a number of other symptoms of PsA that people don’t often talk about. And sometimes it’s helpful to know you’re not the only one experiencing those “strange” symptoms that may not necessarily be on your doctor’s radar!

Here are a few of the less common symptoms discussed within our community. How does your psoriatic arthritis experience compare to that of others? Vote in the polls to see how others responded:

What is fatigue

– Do you experience extreme tiredness, difficulty keeping your eyes open, or even flu-like symptoms that you can’t explain? Sometimes plans get canceled because it’s hard to keep up with life – Cynthia C understands this all too well.

Poll

Uveitis and other eye problems

– The most common eye issue for people with PsA is uveitis, which is inflammation of the eye that causes redness, pain, and can lead to vision loss. If you’ve experienced blurry vision, floating spots in your vision (floaters), unexplained eye pain, or redness, your psoriatic arthritis may be the culprit. Learn more about uveitis and other eye issues.

Poll

Hearing loss and ear damage

– It can be challenging to get a proper diagnosis when you think your hearing loss is due to a routine ear infection, like Leanne did. In fact, ear damage can and does happen in people with PsA – read more about hearing loss in this post!

Poll

Nail dystrophy and nail psoriasis

– Also called nail psoriasis, nail dystrophy affects the appearance of your nails. Those changes might not look nice, but more than that – they can hurt! Read more about this symptom and what can be done to treat it.

Poll

Mood changes including anxiety and depression

– There is no doubt that having PsA can alter your mood – many people here at Psoriatic-Arthritis.com report suffering from depression and/or anxiety. The impact that PsA has on every single aspect of your daily life can take a toll on you emotionally – as it did with Leanne. Read her story here.

Poll

What other symptoms would you like to see more discussion about? Please share in the comments!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Psoriatic-Arthritis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Complete Mess
    5 days ago

    I feel very itchy, especially with plaques on scalp. I feel self conscious and annoyed. I’m due people think I’m dirty or have lice, but it’s not any if that. Just uncontrolled itchiness from head to toe. I give myself scars from scratching. I’m always trying to pop something to see if it gives me sent relief from pain. Clothing bothers me, but with husband and kids, I can’t run around naked m plus one minute I’m hurt then the next I have the chills. I’m exhausted, but when it’s time to go to bed, insomnia due to all the above and the anxiety kicks in of all I want to do but can’t, sho then I start picking at the very dry skin around my lips, nails and feet. I try to peel off all the dry skin till I bleed and it’s painfully raw. I’m losing hair like crazy. I would live my old life back.

  • ScottJ
    4 weeks ago

    Is soreness of the tongue and mouth cankers associated with PsA?

  • Ansam
    2 months ago

    Does anybody else here suffer from a wildly fluctuating appetite?

  • Ansam
    2 months ago

    I wonder, are there any links between PsA and problems with tendons? I have ‘Viking hands’ Dupuytren’s contracture, as do most of my close family, but I’m the only one with PsA and my DC is more pronounced than my relative’s.

  • CathyD moderator
    1 month ago

    Let us know if you’re able to chat to your rheumatologist about it, @ansam! -Catherine, Community Moderator

  • CathyD moderator
    1 month ago

    Hey @ansam, thanks so much for sharing. That is a great question. Tendons and ligaments are affected in around 50% of people with PsA (mine are playing up at the moment!). We have this article which looks at this in more detail: https://psoriatic-arthritis.com/psa-symptoms/tendons-ligaments/

    With regards to Dupuytren’s contracture, I was able to find an study which concluded that there was a correlation between psoriasis and Dupuytren’s contracture: https://www.ncbi.nlm.nih.gov/pubmed/25196833 (unfortunately I can’t find the full text of this article anywhere for free, but the abstract that I just linked to gives the gist of the study). Additionally, I was able to find a case study on a lady with suspected PsA and Dupuytren’s disease: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4386194/ Have you had a chance to ask your doctor about this? I would be so curious to hear their thoughts!

    How are you managing at the moment? -Catherine, Community Moderator

  • Ansam
    1 month ago

    Hi Cathy; what an excellent and fulsome answer. I shall certainly take a look at the linked items. I haven’t had the opportunity to ask my GP about the possible links, and as she is not a specialist, she may may be as unenlightened as me. If I can find the details of my rheumatologist I may drop them a line.

  • GGWinnipeg
    4 months ago

    I am curious about how frequently people have flares, if they have been able to identify any flare triggers…and does anyone else have pain that moves around from joint to joint sometimes daily?

  • PPPARvictim
    3 months ago

    @ggwinnipeg – yes, the pain does move around. One day the ankles &/or feet, next day back or knees. Stress I have found to be a big flare culprit, & sometimes just no rhyme or identifiable reason.

  • Jake moderator
    3 months ago

    Hi @ggwinnipeg – I wonder if you might benefit from checking out Leanne’s article sharing the symptoms/changes she has noticed before she has a flare (https://psoriatic-arthritis.com/living/top-5-flare-signs-how-my-family-knows/). Of course, not everyone is the same, but maybe you could relate to some of the symptoms she mentions?

    This would also make for a great Q&A for the community if you want to submit here: https://psoriatic-arthritis.com/q-and-a/

    – Jake, Psoriatic-Arthritis.com Team

  • KJPORTER
    6 months ago

    How to cope with waking up every morning with stiff and painful joints.

  • Jake moderator
    3 months ago

    Good suggestion, @kjporter. One of our article’s includes a few suggestions like, “taking more time in the morning, maybe a hot shower, or simple stretches to get our stiff bodies moving in the morning.” You can find the full article here (https://psoriatic-arthritis.com/living/3-oclock-slump/) but keep in mind, the overall focus of the article is actually about the early afternoon struggle.

    – Jake, Psoriatic-Arthritis.com Team

  • CelesteIsMe
    6 months ago

    PsA of the mouth, teeth issues (major) and jaw issues — OUCH! Just had 2-hour surgery to correct a major issue caused by PsA.

    Hair loss (probably due to meds)…. ughhh!

    Withdrawal and post effects of using Prednisone!! Miracle drug… that’s also killing me…

    Does everyone drink alcohol when pain meds are sucking royally? How not to become a PsA alcoholic!

    Needing desperately and using my handicapped parking placard. Yet people stare in disdain… you aren’t disabled! Meanwhile they completely missed the ridiculousness of pain and awkwardness simply getting out of the damn car!

    Shall I go on? Because I can!!

    Having to change appliances to have ones that you can easily “reach” and not bend for… like a refrigerator on top, freezer on bottom or side-by-side. Or a top loading washer. Etc etc

    Then there’s the organic products you should be using that touch your LIFE. Laundry, cleaning projects. Buy stock in rubber gloves…

    Ok you’ve enough from me… for now

  • PPPARvictim
    3 months ago

    @celesteisme, plz don’t let the states when you handicap park bother you. Not all disabilities are readily visible, so just ignore them – they stare out of ignorance. The predisone….I feel ya. Hate that med. I got moon face & gained 50 lbs. Won’t take it again unless I’m dying. Sorry, I don’t drink so cannot comment. Figured it wouldn’t mix with the Ilumya (biologic) I’m on. Best to you & God bless.

  • rudospur
    6 months ago

    Psoriasis in the mouth.

  • PPPARvictim
    3 months ago

    @rudospur, do you get oral pustules? I have palmoplantar pustular psoriatic arthritis and when the pustular psoriasis flares badly I will get sore blisters in the same area on the inside of my bottom lip. I had a dermatologist (no longer see that one) who told me psoriasis didn’t form inside the mouth. I beg to differ

  • svincent1
    6 months ago

    My foot pain has been in my heel and arch area

  • Susieqks
    6 months ago

    I was wondering if anyone else has experienced their feet being very cold, the toes and bottom of feet numb, and hurt from ankles to toes. The pain feels like when you get very cold feet from walking in wet winter snow and then your feet hurt as you try to warm them up. I often get sharp pains especially along the outside sides of my feet. Walking becomes very painful sometimes because of the foot pain

  • sarahr
    6 months ago

    Hi Susie,

    I get this a lot and have done ffor ir years- I’m experiencing it at the moment actually! I’ve had nerve conduction and ultrasound studies done last November which were reassuringly normal. I find at night I can get sharp spasm like cramps which wake me uo and can be hard to shift. The GP (backed up by my rheumatologist) prescribed Amitriptyline which I’ve found to be life changing, reducing symptoms by about 75% but the current damp has made things worse unfortunately!

  • Eileen B moderator
    6 months ago

    That sounds pretty awful, @susieqks! You reminded me of a conversation in our forums where somebody said her “feet feel like they are burning, or ice cold, I have to feel them so I can tell.” There are a few helpful links about PsA and foot pain in those comments, too.

    I’m no doctor, and we can’t offer medical advice, so I hope you can discuss your symptoms with a rheumatologist? I hate to imagine anyone living with so much pain, I sure hope you find relief soon. -Eileen, Psoriatic-Arthritis.com Team

  • DPA65
    6 months ago

    Reading these comments and I’m relating to so many of them. I was diagnosed in Oct. 2018. My rheumatologist said that I probably went undiagnosed for 10+ years. Part of the diagnosis was her noticing bilateral scars for 16 surgeries in the past 10-12 yrs. And another this past April (CMC arthroplasty). I find it hard to sleep as night brings the worst pain in hands, feet, ankles, knees wrists and elbows. I have severe pain in tendons especially on the outsides of my ankles, front of ankles and my arches. Staying active really helps reduce pain during the day. Laughing a lot really helps as well. I can handle the pain. What is bad is the embarrassment I feel letting people down and cancelling plans. By outward appearances, I am a robust looking guy. I have been giving myself weekly injections of one of the biologics and it helps somewhat.
    This disease has effected my tendons, eyes, made my voice sound more hoarse, has me limping and fatiguing more quickly.
    As far as I know I am the only one in my family and extended family with PsA. I hope it stays that way.
    You all are some tough folks! Glad to have found this site as I feel less isolated. Hand in there, folks!

  • PPPARvictim
    3 months ago

    @dpa65, I certainly can empathize with your ankle & foot pain. I walk my dog & for 2 days it feels like someone has beaten my feet with a baseball bat. Have you tried Valtoren cream (script only)? It helps a tad. Also a foot spa like you find at a drugstore is a good investment. I hate this because I used to walk 4-5 miles per day & loved it. Wishing you health…

  • DPA65
    3 months ago

    Yes, but what I’ve found that relieves the pain so I may sleep is Aspercream brand roll on Lidocain. It’s like a little miracle! I apply 30 minutes before bedtime and the pain is greatly reduced! If you ever have the opportunity to buy a heated parafin dip, I really suggest it for home use! Works great on hands and feet!

  • Jake moderator
    3 months ago

    Hey @dpa65 – Just wanted to check-in. How have you been lately?

    – Jake, Psoriatic-Arthritis.com Team

  • DPA65
    3 months ago

    Doing okay, thanks Jake. I still have bad right leg pain and ankle pain. Still on 2x daily sulfasalazine and Enbril once a week. My joint damage is noticeable as my diagnosis was probably 10 years late. Glad I found out before more damage could occur. I’ve had a couple flares and they are so strange feeling. The tiredness, deep bone pain and slight nausea made me feel like it was a mild flu that lasted about a week. This disease shows me I’m tougher than I thought I was.

  • Yasmin
    6 months ago

    I don’t have PsA anywhere in my family either and that is one reason, though suspected, I didn’t think what I was feeling could be an autoimmune disease. At this point I am only doing natural/herbal treatment, focusing on “inflammation”. Turmeric has been very helpful. I am starting Ayurveda medicine soon because I don’t want to deal with the side effects of Allopathic medicine.

  • Frances00
    7 months ago

    Thanks for the list!

  • Yasmin
    7 months ago

    Pain and tenderness to the touch at the hair roots. I started having it almost 2 years ago, with a flare up in the winter. I am almost 100% sure that it has something to do with the inflammation in the body. Unfortunately none of my doctors and specialists (GP, Dermatologist, Rhuemotologist) know or have even heard of it. Its extremely frustrating and even sad that even the specialist are so limited in their knowledge.

  • Eileen B moderator
    7 months ago

    I get why you’re frustrated, @yasmin! That must be terribly uncomfortable. I’m not a medical professional and can’t offer medical advice, but you reminded me of a medical study I stumbled upon a while ago about scalp dysesthesia outlining a treatment utilizing simple exercises and stretches. I noticed it because it was linked to another medical study about its link to cervical spine disease that another community member was grappling with. Have any of your doctors offered any help to relieve your symptoms — or at least, committed to keep searching for a proper diagnosis and treatment? I hate to imagine you just enduring it forever! -Eileen, Psoriatic-Arthritis.com Team

  • Yasmin
    7 months ago

    Thank you Eileen. And nope. Neither the GP, Dermatologist or the RA even looked interested in figuring out. I have researched this issue myself and found a couple of things that can cause this kind of pain and to be honest, they were pretty scary. What I wanted to know if it has any connection with PsA. To me it’s common sense since its all about “infammation”. Actually my first RA in Santa Monica diagnosed PsA , over 18 months and at least 70 different tests, at different time. I have moved to High Desert since then and have been to 2 specialists who both didn’t agree with the diagnosis.

  • JMeyer62
    7 months ago

    I’m not doing too well, PsA has destroyed my hips ,last August I had my right hip replaced and two weeks ago on May 8th yesterday i went for a check up because the hip has been popping well guess what something went wrong with the cup and i will be having surgery again this coming Tuesday . I feel like my life and my body are falling apart and to top if off ever since my wife went thru the change of life she has no interest in me sexually at all , its been almost 5 years and I am sorry I miss the closeness the feelings of safety and being wanted ok enough of my rant and Thank you everyone for your support

  • Frances00
    7 months ago

    I had my second hip replacement in February 2019. Still not recovered & going to physical therapy. And I’m here as well if you need to vent or need moral support.

  • CathyD moderator
    7 months ago

    We’re here anytime you need to vent, @jmeyer62! Hope the surgery went well and your recovery goes smoothly. Keep us updated! -Catherine, Community Moderator

  • sarahr
    7 months ago

    Awkward to bring up I guess but the inevitable changes to confidence and sex drive. On a side note I also think arthritic sex positions and tips would be a useful read!

  • Frances00
    7 months ago

    Agree!

  • Jake moderator
    7 months ago

    @sarahr – Thanks for being open about this area of life. This is definitely something that could be addressed or talked about more in the PsA community and we always try to create content based on the community needs, so we’ll take this into consideration moving forward! If you’re willing to share: How have you coped with the changes to sexuality and intimacy in your life? -Jake, Psoriatic-Arthritis.com Team

  • Psarah
    2 months ago

    I suffered from Vaginismus for 8 years. Was unable to have sex. Since taking Cymbalta I’m 95% improved.

  • Frances00
    7 months ago

    I’m single and I feel no one would want to date me because of my PsA, It causes me to be unreliable due to debilitating fatigue. I also don’t know when to tell someone I have PsA – on the first date? second date??

  • Eileen B moderator
    7 months ago

    It definitely complicates a social life, Frances00. One of our contributors wrote about this very topic last year, Honesty and Patience are Key When Dating with Psoriatic Arthritis. The author was diagnosed with PsA as a child, so she has a lifetime of navigating a social life with chronic illness. She also wrote A Guide to Introducing Your New Partner to PsA. My favorite line from that article is, “You know you have a keeper when he says, ‘I Googled ‘psoriatic arthritis’ last night.’” I also can’t help but think of the silver lining of dating with PsA — chronic illness is an effective jerk repellent! I bet it feels more like a force field sometimes, though. 🙁 I hope you find somebody kind and compassionate soon. Meanwhile, we’re here for you. -Eileen, Psoriatic-Arthritis.com Team

  • orangeglow1
    8 months ago

    why don’t the insurance companies cover the medicine Doctor’s prescribe? The should be a law to protect people who have a medicare plan with Humana.

  • youngNrestless86
    6 months ago

    I could not agree more. Luckily, many of the big pharma names offer assistance that puts you in a place of paying little to even nothing on otherwise expensive treatments! The folks at enbrel helped me a great deal…ask your rheumatologist and/or dermatologist about payment assistance programs.

  • lydiamene
    9 months ago

    PsA comes with alot of other aches and pains but it being an autoimmune illness it was my first autoimmune illness before all my others. So maybe address that it can be combined with other autoimmune illnesses. First I was diagnosed with PsA, then Hypothyroidism, soon after than Lupus, then fybromyalgia and now Celiac. All of these are autoimmune illnesses more research and information needs to be put out there. The real surprise for me was the Celiac that one really threw me, did not expect that one at all.

  • Jake moderator
    7 months ago

    Hi @lydiamene – Very true! It’s quite common for those with PsA to be diagnosed with another health condition. We do have an article detailing some of these comorbities. It also links to more specific articles that describe these other conditions in more detail. You can find it here (https://psoriatic-arthritis.com/psa-affects-health/) Thanks for sharing here! -Jake, Psoriatic-Arthritis.com Team

  • neverFEELgood
    9 months ago

    Lower back pain” hot flashes, pimples blisters ,headaches ear pain has cbd helped others?

  • Jake moderator
    7 months ago

    Hi @neverfeelgood – thought you might want to check out this article related to your comment on CBD. Have a read (https://psoriatic-arthritis.com/living/medicate-medical-marijuana/) and be sure to check out to the comments section to see what others have said. Also – we have a Q&A section on the site that might be helpful to search or post if you’d like! (https://psoriatic-arthritis.com/q-and-a/) Hope this helps! -Jake, Psoriatic-Arthritis.com Team

  • youngNrestless86
    6 months ago

    Like @dpa65 I too am a medical cannabis patient on my state. I dabbled with “pot” in college but my experience with medical cannabis has been vastly different. I have seen dramatic improvements in my conditions through the use of CBD and cannabis. The world of these treatments can be overwhelming. I am happy to help and answer any questions you may have and/or discuss my personal successes with this route of treatment!
    DISCLAIMER: I am not a doctor…so before using CBD and/or cannabis treatments, please consult one 😉 also ensure that this is a Legal option in your state or province.

  • DPA65
    6 months ago

    Thank you for the question and the reply! I received my medical cannabis card a couple months ago. I tried CBD oil, but you never know really how many mg it truly is. I’m going to the dispensary today and talking to them about cbd, cbd thc ratios and how the different products can be used through the day to help minimize pain and inflammation. I’ve never used cannabis or it’s derivatives, so starting slowly. I really just want reduced pain and to be able to fall asleep without the bad tendon pain.

  • JMeyer62
    9 months ago

    I get the overall feeling of hopelessness. So much of my life has changed since being diagnosed but nothing is worse then the feeling you can no longer provide for your family 🙁

  • Jake moderator
    7 months ago

    @jmeyer62 – I hear you. PsA can impact every aspect of life, which can definitely lead to feelings of hopelessness. You’re not alone with this experience. It’s a journey of accepting the new normal that comes with a PsA diagnosis. I also want to recognize your feelings regarding no longer providing for you family as you once were able to, which can definitely create some negative emotions. How have you been lately? -Jake, Psoriatic-Arthritis.com Team

  • mlc470
    9 months ago

    I have an odd question, does anyone experience frequent bowel movements before a flare? Hope it’s not too personal of question. I am new to this forum, it seems lately day or two before I will have very frequent bowel movements, then I will have spine pain, all over body pain. Ankles and heels will hurt, and feel very tired and running a low temp.

  • NoniB2
    8 months ago

    Bowel frequency is part of my everyday life now; celiac disease, short gut due to several life-threatening obstructions, and PSA. One autoimmune disorder seems just to be a herald of others to come (our immune system is just ‘gone whacky’). Was diagnosed with psorias and psa on the very same day when I happened to see my dermatologist and my rheumatologist an hour apart, several years ago. Saw my rheum yesterday and discovered my primary had not noted that my thyroid function was again out of control (Hashimoto’s-hypo) and had not adjusted my dose of levothyroid sodium. Our bodies are so individual and even my own is not always consistent in behavior, so yours could very well be a sign that something is amiss. Thyroid function is so integral to our overall feelings of wellness or otherwise. A good primary doc, rheumatologist, and if needed dermatologist (and ophthalmologist too for the eye-related problems). I SO fortunate to have good specialists and good insurance. Many of us also know that gluten causes us problems (mini- to major flares, dependent on how much we take in of it). Just tune out the folks who say gluten-sensitivity is ‘just fashionable’ right now because an increasing number of people are becoming sensitive to it and if you have autoimmune issues it might be one of the triggers. Bowel symptoms are a huge part of that. Key is finding what works for you and what does not.

  • annelan
    9 months ago

    Not responding to this question but want to assure you that PsA is possible without psoriasis. I was diagnosed with PsA with no skin condition. After taking biologics, I did develop very mild psoriasis that comes and goes and isn’t a big issue. So hang in there and find a rheumatologist who will pay attention to your symptoms. You do deserve a great care team. It makes all the difference in the world.

  • mlc470
    9 months ago

    Thank you, I feel like I’m on a rollercoaster. I’m not really sure I will find the help where I go. I’m trying. I feel so sad sometimes, and I worry everything in my body will go out before I find resolution. But I keep trucking.

  • Eileen B moderator
    9 months ago

    Welcome to our community, @mlc470. I thought I’d chime in while you’re waiting for others to respond. I can’t offer medical advice, but I thought you might find this article interesting, Managing Pain with PsA and Gastrointestinal Issues, as well as this article about comorbidities, Why Do Autoimmune Conditions Collect? I also found a conversation on our forum about fevers, https://psoriatic-arthritis.com/topic/fever/.

    Of course, it’s always wise to discuss new symptoms with a doctor, just to be on the safe side and to rule out any dangerous side effects. Have you been working with a rheumatologist?

    -Eileen, Psoriatic-Arthritis.com Team

  • mlc470
    9 months ago

    Thank you, I will read those. Looking for a new rheumatologist. The one I had just seen after many years of having undiagnosed symptoms, basically told me it’s nothing. She wasn’t a dermatologist and didn’t know what the rash was about, therefore without a diagnose of psoriasis first, no possible way I can have PsA. This week I am seeing a dermatologist. It’s been such a long haul, while I wait, my achilles tendon has partially torn, now have chronic tendonitis, on top of plantar fasciitis. With arthritis in multiple joints, and SI. In addition to all the little things that happen when I have a flare which seems to be almost continuous. Ugh! Even writing this makes me break down. So sorry my posts are always so long. I sometimes wonder if I will get help before I end up not being able to work anymore.

  • Eileen B moderator
    9 months ago

    Saddens me to hear that rheumatologist wasn’t very helpful, @mlc470. No wonder you’re so frustrated! While yes, most people with PsA are first diagnosed with psoriasis, PsA develops before psoriasis in 10 to 15% of cases. One of our writers was diagnosed with PsA many years ago without having psoriasis and still hasn’t had any skin issues. She wrote the article, Psoriatic Arthritis Without Psoriasis.

    The National Psoriasis Foundation can help you find the top rheumatologists in your area. You deserve a medical team firmly in your corner, helping you reclaim your life — and your work!

    No need to apologize for long posts, we get it. Vent, blurt, gush, rant, let it all hang out! We’re honored to listen and help in any way we can. -Eileen, Psoriatic-Arthritis.com Team

  • JLS827
    11 months ago

    I have patches that come and go on my tongue. My dermatologist thinks these may be related to PsA. They are quite painful as the surface seems to peel away. Anyone else?

  • jb58
    9 months ago

    My patches are inside lips. I get a lot of blisters too.

  • Eileen B moderator
    9 months ago

    Sorry nobody else with tongue issues saw your comment and replied, @jls827. From what I’ve read, oral psoriasis is pretty rare. Perhaps you’d like to post your question to our Q&A at https://psoriatic-arthritis.com/q-and-a/ so more people can see your question?

    While researching this, I found it interesting that several of the sources I came upon were British medical journals, including this well-sourced article, Oral Psoriasis: Diagnosis and Treatment. I also learned there’s a similar condition called “geographic tongue,” and its relationship to psoriasis is being studied here, Relation Between Psoriasis and Geographic Tongue.

    I know your dermatologist weighed in, have you been able to discuss it with a rheumatologist?

    -Eileen, Psoriatic-Arthritis.com Team

  • JLS827
    9 months ago

    Thank you—my specialists bounce me-around so I guess I will take this to rheumatologist and see an oral pathologist. Thank you for the research.

  • dalmav41
    11 months ago

    Leg issues, very weak. My knee feels like it could give out at anytime. They don’t want to do knee replacement, too risky for infection. And I don’t think it’s that bad, but around it my legs just feel weak all the time. After setting too long I have to have help getting up. Could it be the tendons and ligaments? Why want my rheumatologist do anything?’ I’m on humira, I go in and he asks does the humira seem to be working,, well your asking me what do you think!!!!!

  • kwtawalker
    11 months ago

    I would like to see other medical issues addressed related to PsA: SI Joint Dysfunction, Plantar Fasciitis, Thyroid issues, Raynaud’s Syndrome.

  • CathyD moderator
    9 months ago

    Hey @kwtawalker, I just wanted to circle back and let you know that we recently published a couple of articles that you may be interested in. One on thyroid disorders: https://psoriatic-arthritis.com/clinical/thyroid-disorders/ and one on Raynaud’s: https://psoriatic-arthritis.com/clinical/raynauds-phenomenon/ Thanks so much for your suggestions – keep them coming! 🙂 -Catherine, Community Moderator

  • CathyD moderator
    11 months ago

    Hi @kwtawalker, thanks so much for your comment. I’ll be sure to pass on your feedback to our writing team!

    We have some information on sacroiliitis: https://psoriatic-arthritis.com/psa-symptoms/lower-back-pain/ and plantar fasciitis: https://psoriatic-arthritis.com/living/improving-your-plantar-fasciitis/ which I hope will be helpful. Let us know what you think!

    How are you managing today?

    -Catherine, Community Moderator

  • Matty
    11 months ago

    Hi the following are of interest as they have been investigated extensively but remain undiagnosed. So pain and inconvenience continue during a flare of these symptoms.
    When I have suggested if they are linked to PSA the answer is probably not.
    Debilitating gut pain
    Gut bloating and inflamation
    Paresthesia, including numbness, prickling, itching, burning, or crawling sensations mostly face and scalp but can occur anywhere during a flare
    Brain fog and loss of word finding and migraine like vision / eye pain
    Thank you

  • Jazzy532
    11 months ago

    Why Is Palmar-Plantar so difficult to manage? I was offered 20-year-old drugs, yet when I went to another Dermatology unit, I was told, We don’t treat your type of PS here, But they will apply for funding for me to start Biologics, The Side effects are deadly, But why is my type so destroying?

  • m4r14j
    1 year ago

    Hi all, OMG so many odd symptoms I never realised were PsA and when you mention it to the doctors sometimes they look at you like you’re insane.

    Can anyone tell me if they experience either of these;

    1) chest pain / breathing difficulties? The doctors were no help whatsoever, the pain was in my breastbone it meant I could only use the top of my lungs so barely breathe, I could hardly talk, struggling with gasping to finish a sentence and if I did push to speak my head went fuzzy like faininting and my fingers and toes tingled. Prednisolone 40mg did not help neither did all asthma inhalers. Eventually it did go away by itself after 2months (was on apremilast and 20mg prednisolone for the PsA at that time)

    2) infertility problems? My partner and I have only used protection for short periods (when the medication I was on prohibited pregnancy) for a decade now and only managed a single pregnancy which I miscarried.

    3) extreme periods! I get anaemia anyway but I get the most god awful heavy, excessive bleeding doubled over in pain cramps most months, needless to say my anaemia worsens afterwards!

    I also get acid reflux, gastro problems, dry eyes, tinitis hearing problems, extreme fatigue, tired all day but insomnia at night, cant sleep more than 4-5hrs before pain and stiffness wakes me, tendon problems – going on tip toes snaps my achilles and this brain fog – I feel half my IQ got flushed down the loo not sure if its the MANY drugs I tried or the constant fatigue but I cant make decisions and I get muddled up if changes are made to anything.

    Sorry long post! Thanks, maria

  • MarthaGrowdon moderator
    8 months ago

    Hi m4r14j,
    I’m sorry to hear you’re in such pain and discomfort due to your PsA. I did want to share this article relating to chest pain, I thought you might find it helpful: https://psoriatic-arthritis.com/answers/chest-pain-costochondritis-tietze-syndrome/. Brain fog is really common with PsA, too (https://psoriatic-arthritis.com/living/experiencing-brain-fog-cognitive-issues/). A LOT of folks in this community struggle with that. I hope others will comment on their experiences with changes in fertility and menstruation with PsA, too.

    Sending you love today,
    Martha
    Psoriatic-Arthritis.com Team

  • NoniB2
    8 months ago

    So many similar problems beginning as a teenager w/horrible dysmenorrhea, heavy periods w/clotting, anemia, abdominal pain aside from cramps. Undiagnosed at the time (one ER doc told me “When you decide it’s okay to be a girl, you won’t have these problems.” Dad had taken me (14 yrs old) to ER because of how pale, cold sweat and pain level, fearing appendicitis. Ultimately diagnosed by a rheum and derm w/PSA, palmar-planter Ps, celiac disease, Hashimoto’s hypothyroidism, etc., etc. First in the family to ever be diagnosed w/these things except mat. grandmother w/ pernicious anemia, and now I know my own mother had PSA affecting at least her feet; she cried in her sleep from pain and fatigue kept her half asleep. I personally avoid as many drugs as possible because I have adverse reactions to so many and the list is going up. Yesterday found out my thyroid med is too low a dose (rheum noticed). I won’t/can’t take biologics because of two near-death gut surgeries with complications. I definitely would not have survived per the surgical team had I been on them. Gram-negative sepsis, kidney failure, etc. SO, I’m using nutrition, food as my medicine, w/help from my rheum on specifics. Keep track of your thyroid function carefully. Gluten is not our friend for most of us. Hope you can find some healing and comfort.

  • JLS827
    11 months ago

    My rheum dr said that chest/lung pain is called chostocondroitas (spelling?), and it is in the tissues that connect the ribs. Not much to treat it but time. So sorry for your struggles.

  • Capsfan
    12 months ago

    Do you take methotrexate? It causes miscarriages.

  • karenm
    1 year ago

    Does anyone have problems with anemia? I have seen it listed in some places as a PsA symptom. I have been anemic for most of the 15 years since my diagnosis. The only thing that helps is iron infusions. But, the anemia returns, and diagnostic procedures have been exhausted.

  • Eileen B moderator
    1 year ago

    Yes @karenm, I’ve read many comments in our community about having low iron, often in relation to fatigue. A few people even had a hematologist to treat it. In fact, anemia (low iron) is common enough around here that “The Lucky Iron Fish” won a spot on our list of PsA Community’s Favorite Things. I’m not a medical professional and can’t offer medical advice over the internet, but if low iron concerns you, I hope you can have a productive conversation with a doctor about this soon. Do you have a trusty rheumatologist? Keep us in the loop, we’re here to support you. -Eileen, Psoriatic-Arthritis.com Team

  • karenm
    1 year ago

    Yes. I have significant acid reflux. Not sure whether it is medication/ side effect related, or disease driven, or other. (I take biologics, currently cosentyx, methotrexate, injectable to avoid stomach absorption, hydrocodone, and an antidepressant. ) To treat GERD I take omeprazole twice a day, and have tried to modify my diet ( I had one doctor recommend a food information/cookbook called “Dropping Acid.” Helpful, but hard for me to stick to with family meals.)
    Good luck!

  • ebby
    1 year ago

    Does anybody suffer from heartburn, acid reflux, etc.? I have had a bit over the years but this past while I am really suffering. I think I read somewhere that heartburn and PsA go together often. If you do have this problem, how do you deal with it? Thank you anyone who can give me some help!!!

  • Rojo
    12 months ago

    Yes. For three years now. It persists through three major med regimen changes. I have been taking omeprazole 40mgs daily for those three years. If I miss a dose/day the symptoms(heartburn, hiccups, chest pain due to gas) begin within 12 hours after waking. If I run out of omeprazole, baking soda in water helps. Popular antacid tablets do not.

  • karenm
    1 year ago

    Yes. I have significant acid reflux. Not sure whether it is medication/ side effect related, or disease driven, or other. (I take biologics, currently cosentyx, methotrexate, injectable to avoid stomach absorption, hydrocodone, and an antidepressant. ) To treat GERD I take omeprazole twice a day, and have tried to modify my diet ( I had one doctor recommend a food information/cookbook called “Dropping Acid.” Helpful, but hard for me to stick to with family meals.)
    Good luck!

  • MarlonC
    1 year ago

    Painful lower spine. Pain from standing too long. Limits mobility and is debilitating. Prednisone pulses help but you can’t stay on it. Insurance is a huge jump through the hoops game. I’m wanting to try Otezla but insurance requires step therapies first. Frustrating, and the pain continues. Did I mention PAIN?

  • eebrown51
    1 year ago

    Stomach issues: reflux…heartburn…bloating..food not digesting and throwing up

  • Salbe428
    1 year ago

    Does anyone else with Psa go through having their hands and feet swelling, and feeling like they are on fire? Then they start swelling like a bad sunburn for days or weeks before they heal. It is extremely painful and my house is a mess because I cannot
    clean because of the pain.

  • kwtawalker
    11 months ago

    I am 102 pounds and I can gain 6 pounds in a day easily from swelling in feet, ankles and thighs. This is edema. At first, I thought it was a side effect of medications. I now realize it is just part of PsA.

  • hubba1sm
    1 year ago

    Yes! I’ve been experiencing that exact thing from the very start, even before I had any idea what was wrong with me. Now, with regular biologic treatments of Remicade every 8 weeks for the past 5-6 years, those episodes are less frequent and less severe. But I totally understand not being able to clean due to pain! People have to learn to get the “F” over it. And you have to realize pushing just to clean your house is not worth how you will feel the next day. Nothing wrong with doing a little at a time, a lesson I STILL continue to struggle with at times. Good luck Hun!

  • melissagallo
    1 year ago

    Oops! Forgot to include this….also posted as a reply at bottom of this thread….hope that’s ok.
    The brain fog is horrible! I have so many things I have started to do and can’t seem to get back to….. I lose focus and forget what I’m doing so easily! No one believes me when I talk about this! How can I help them understand this is a real thing?

  • youngNrestless86
    6 months ago

    The brain fog is so real…it’s made my job (sales) especially difficult. Haven’t been able to find anything to help with this part and not sure if it’s my meds (mtx, enbrel, medical cannabis) or the PsA.

  • melissagallo
    1 year ago

    Symptoms so numerous! Extreme fatigue, pain in my hands, disfigurement of my hands really really gets to me not only due to how they look but the inability of normal use!!! Never-ending low back pain no matter what. The oddest one is leg cramping especially when driving….not in my calves but starts on top of my thighs and wraps around my leg to back of thigh, skips my calf completely and can cause havoc to my foot if I can’t stop it before getting that far. Painful!!!!!

  • alexanderlonda
    9 months ago

    I have terrible body, leg and foot cramps. I get cramped up under my rib cage whenever I reach for my seatbelt to buckle it. Cramps attack my legs in the night and I struggle to get them to unclamp. My ankle is painful all the time and sometimes I will get cramps in the ankle that bring me to my knees in tears. The cramping is a big fear for me, sometimes I hate going to bed because of the night cramps. I can’t pinpoint what triggers these cramps. Both my thighs cramped on me the other morning and fell to my knees sobbing it was so painful.

  • Psarah
    2 months ago

    I get horrible painful cramps in my tongue and throat. Also my stomach and hands, and calves. The tongue and throat are the worst.

  • beckyjo
    1 year ago

    Tendinitis(I have tennis elbow which is very painful),shortness of breath,dry eye

  • melissaculbertson
    1 year ago

    Feels like tendons are being ripped away from my knee joints? Severe stabbing and shooting pain that wakes me up at night. Insomnia more often waking to pain or just at 3 or 4 am and unable to return to sleep. The joint pain was subtle and started in my ankles and spread to the knees and hips over a period of 3 to four months before that was 2 years of severe gasterointestinal colitis and am worried that this may be more than just PSA. Mother had lupus. The pain has become severe in my lower back and is up to my elbows and hands with one slightly swollen but very painful index finger. I am concerned at the pace of joint pain and how fast it went from periodic and limited to most of my joints and pain lasting all day and debilitating. The fatigue is unlike anything I’ve experienced. Is there ever time to be alarmed and treat this as an emergency situation?? From what I read it sounds like my symptoms are super aggressive and I had zero joint pain 6 months ago…worried 🙁

  • melissaculbertson
    1 year ago

    Gasterointestinal pain, diarrhea, abdominal bloating, loss of appetite and severe nausea

  • emmag3139
    1 year ago

    More detail on enthesitis and tendonitis as this is my pain issue on my whole body at present. Hurt everywhere from my eyes to my toes…. feel totally done in with it (Am never a negative person usually)

  • CathyD moderator
    1 year ago

    Hi @emmag3139, I’m sorry to read that you’re suffering with tendonitis. That is one of my issues too. It can be incredibly tough to cope with the pain every day. Have you had a chance to check out this article yet? https://psoriatic-arthritis.com/psa-symptoms/tendons-ligaments/ Let us know what you think! -Catherine, Community Moderator

  • Poppy
    1 year ago

    Starting out with Humira while on Methotrexate. How bad can I expect issues before seeing improvement?

  • Poppy
    1 year ago

    Howdy Ma’am, I had my primary doctor assist with prescribing a sleep aid(zolpidem) to assist me. The pain levels were so bad at times that sleep was Not an Option. Mite give it a try. Have a Blessed Day!

  • susana
    1 year ago

    Difficulty achieving restful and invigorating sleep. I’m always extremely tired during the day too, because of this: During sleep, I am always waking up in pain because of the position in which I am sleeping, I change my position and fall asleep again.

  • SBehe1304
    1 year ago

    Has anyone dealt with sores on the sides of your tongue? Is this too related to PsA?

  • kwtawalker
    11 months ago

    I experience tongue pain a lot. My tongue gets swollen, which causes the sides to rub against teeth. It is terrible.

  • VickiN moderator
    1 year ago

    Hi @sbehe1304, I’ve heard a few people here talk about canker sores, but usually it’s in the context of medication side effects. Are you taking any oral medications? Feel free to post here as well: psoriatic-arthritis.com/q-and-a
    Warm wishes,
    -Victoria, Community Moderator

  • Paulob
    1 year ago

    I have undergone 2 hip replacements at age 31 and 33. I am noe 36 and Even though the joints needed to be replaced the tendon sheaths around the hip replacements are inflamed. Has anyone else had joint replacements with PsA? Thank you

  • Joanna
    1 year ago

    Always being HOT and sweaty during a flair and the ITCHING! Looking “normal” when you feel like cra & people not believing you are ill.

  • Psarah
    2 months ago

    I’m always hot and sweaty.

  • RONAVRET
    1 year ago

    Shoulder and neck pain.

  • kwtawalker
    11 months ago

    I am about to have an MRI on neck. 2 years of excruciating pain. I have tried massage, acupuncture, chiropractor, cortisteroid injections, ant-inflammatory. I have done exercises, foam roller, pressure ball, hand-held massager. I have huge knots in neck and shoulder. I went to orthopedic surgeon thinking it was my shoulder, and I was told this was coming from my neck. MD ordered MRI, but I have spent 6 months appealing denial by insurance. I just won my Appeal.

  • CelesteIsMe
    1 year ago

    I suffer miserably with Plantar fasciitis, and Achilles tendinitis – both tendons fully inflamed because of my PSA. So the miserable inflammation causes an existing (usually non-pained) bone spur to wreak havoc on BOTH tendons…. so bad that now they’re both torn. Only way to “fix” this excruciating pain is surgery…. and I’ve exhausted every possibility— believe me.

  • kwtawalker
    11 months ago

    I have had plantar fasciitis over 15 years. I have to change my shoes a couple of times a day. I have done the shots in the feet without much relief. I only ever wear really good shoes now, and this helps a little, but my feet are a constant aggravation.

  • kitkat6
    1 year ago

    Does vertigo, dizziness happen to anyone?

  • Rojo
    12 months ago

    Sporadically. I associate it with magnesium supplements I take. It only lasts a minute but it’s intense. The first time it happened I was fortunate to be near a chair and sat until it passed. I had a chronic instability d/t dizziness while taking a muscle relaxer. I stopped taking the muscle relaxer because of this.

  • PKnickmeyer
    1 year ago

    I do have dizziness, but am unsure if it is due to PsA or medication. I am on Diclofenac and Methotrexate.

  • RONAVRET
    1 year ago

    Yes, not frequent but yes. Still walking with aid.

  • VickiN moderator
    1 year ago

    Hi @kitkat6, sometimes when PsA affects the inner ear it can lead to dizziness and vertigo:
    https://psoriatic-arthritis.com/psa-symptoms/
    If this is a new symptom, definitely worth a check in with your Rheumatologist/Doctor to make sure there isn’t another underlying cause/that it isn’t a side effect of any medications.
    Sending a hug, dizziness and vertigo are really tough symptoms to ignore.
    -Victoria, Community Moderator

  • Pudge
    1 year ago

    embarrassing topic for females…. vaginal dryness?

  • Rebecca moderator
    1 year ago

    Someone else had some questions about symptoms in the vagina and the relationship to PsA – https://psoriatic-arthritis.com/q-and-a/women-psoriatic-lesions-inside/ I’m not sure if any of this is helpful, let me know any specific questions and I’m happy to try to find an answer!

  • Ladybug
    1 year ago

    Rebecca… answering about KT tape, There are videos on you tube put out by the company.

  • Rebecca moderator
    1 year ago

    Thanks! Off to check them out….

  • Ferget56
    2 years ago

    The bottom & sides of my feet have been getting really sore making it extremely painful to walk. I have bought several kinds of shoes to try to find the most comfortable pair. I need them to adapt to swelling feet & ankles. Sketchers slip-on sneakers seem to work well. I have all the symptoms listed in this article, but fatigue has been the worst to manage for me.

  • EJRB
    1 year ago
  • EJRB
    1 year ago

    My feet swell, ankles, and toe joints are tender and swollen often – I relate. I found the most amazing pair of shoes for me – maybe you can try them. They cost about 30$ usually – they are called Champions. They are a soft side shoe, with a thick cushioning for your soles. I have never had such comfort. SO even when I go for a walk and my feet start to rebel, I can endure it much longer with these. I got them at Payless. They only come in gray they told me. But its a jersey gray, no shoelaces but look something like tennis shoes only nicer.

  • Findmygroove
    2 years ago

    I get alot of tendonitis in my achilles and on the bottom of my buttock bones that you sit on, and muscle cramps if I overuse it by trying to excercise. I know it’s important to exercise as I also have rheumatoid and osteo..very depressing..

  • Ladybug
    1 year ago

    I have the exact same symptoms. Especially the buttocks. I also have herniated discs in the lower back.
    I find tonic water really helps the muscle cramps.

  • EJRB
    1 year ago

    Nobody talks about the Tendonitis. I have it all over. Up and down my spine, in my shoulders, wrists, ankles, fingers, neck. The only cure for tendonitis that I know of is rest – so for the past several months my exercises have been kaput because I have been flared up. I stop walking and I gain weight…. then the problem of weight on my knees and ankles …. OMG it is a constant vicious circle.. But I keep trying to find ways to do stuff without aggrivating it. I refuse to give up.

  • crafterss10
    11 months ago

    I have Tendonitis down my arms ,in some of my fingers , down my left leg in my butt check , on my feet . and I have bone spurs down my spine . sometimes 3 to 4 of them will act up at the same time . I feel like i’m in hell . I’m in consent brain fog. I even forgot my only grandsons name ! it took me looking him up to remember 🙁 I was diagnosed with PA in my early 30s . now I’m 58 . I use to be a social butter fly . my kids are all grown . now I just stay in my house every day . because people don’t understand the pain I’m in .

  • Ladybug
    1 year ago

    Have you tried KT tape? It really helps my tendonitis. Especially the Achilles and the knees.

  • Rebecca moderator
    1 year ago

    I’ve heard great things about KT tape – how do you know where to put it though?

  • Eileen B moderator
    1 year ago

    It’s a Catch 22 for sure, @ejrb. If you don’t exercise to protect/heal your tendons, it contributes to weight gain that impacts your knees and ankles. I’m sorry it’s such a struggle, but I’m impressed with your perseverance! Have you ever worked with a physical or occupational therapist? Perhaps they can assist you in walking that fine line between inactive and aggravating your tendonitis? We have an article on the subject at https://psoriatic-arthritis.com/psa-symptoms/tendons-ligaments/. I hope you find some relief very soon. -Eileen, Psoriatic-Arthritis.com Team

  • rickrackfingers
    2 years ago

    If dizziness is a symptom, I would like to hear what can be done to minimize it. It really interferes with my quality of life.

  • jesbri27
    2 years ago

    I have it as well.

  • Eurotrekker
    2 years ago

    Oh my gosh! The fatigue, mood and nail issues I knew about. I haven’t had the ear problems. However, I’ve been telling my rheumatologist/immunologist, my PCP, my Opthalmologist, and even my sleep Dr about my eyes becoming blurry and sometimes feeling like someone is pushing their thumbs through my eyes sockets. The PCP told me to go to my rheumatologist. The rheumatologist told me to see my opthalmologist. Though he found a rupture behind one eye, he said that should not have been causing this pain. He said that my C-PAP machine may not be fitting properly and may be front out my eye. The sleep Dr said that according to my machine’s readout, the mask is secure and shouldn’t be causing the problem.
    Thank you so much for this article.

  • Penstemon
    2 years ago

    Constant cold feet, tingling and burning, having to have a blanket over them even in the summer. But my biggest issues are my eye pain and floaters coupled with multiple back and knee surgeries. My joints are under attack and disintegrating. The severe bursitis in my hips is causing pressure on nerves to my legs. The pain wakes me 1-5 times a night. Nothing seems to help all the pain for very long. Lack of sleep causes my exhaustion and “brain fog”.

  • CathyD moderator
    2 years ago

    Penstemon, I am so sorry you are experiencing all of these symptoms, I really feel for you. Are you treating your psoriatic arthritis with anything currently? Please know you are not going through this alone – we are here for you to lean on anytime you need us.

  • Dedra Davis
    3 years ago

    I was diagnosed with PsA in November. I’m on Humira. It seems to work ok. My question is-do y’all get mouth sores? I have one and it seems my Dr said it’s a symptom. For almost a week I’ve felt like I’m getting sick- flu-like symptoms, extreme fatigue, body aches, headaches and I’ve had a slight sore throat, here and there. And I have a mouth sore. It seems it has something to do with that. Also, it comes in waves. I’ll be so tired and achy and then a bit later I am better. It’s confusing. Like I’m getting sick, and then not, getting sick…and so on. Is this a flare up??

  • Zann
    2 years ago

    YES!!!! Mouth Sores!!!!! Painful and pop up without any notice. I used to get them all the time at the beginning of this disease, but now I’m on Methotrexate and it’s controlling them a bit. My Pharmacist gave me the best suggestion EVER!! Purchase COLGATE PEROXYL mouthsore rinse!!!!! Best investment ever!! I use it all the time when the buggars pop up, and it only takes a couple of days to get them gone! Please get yourself some!! (In the toothpaste aisle!) Good luck!!!

  • Casey moderator
    3 years ago

    Hi Ddavis!

    Thank you for your question! I’m so sorry to hear you’re feeling this way!! While others in the community may be able to chime in on their experiences with mouth sores, we do recommend talking to your provider about any new or worsening symptoms. It sounds like you have a few other potentially debilitating symptoms going on. It may be a good time to talk to your provider about all of these issues combined. If you do get a chance to talk to your provider, let us know what they say! We’re here for you and wishing you some relief soon!

    Best, Casey (Psoriatic-Arthritis.com Team)

  • jennyb
    3 years ago

    I have MS as well as PsA, and sometimes I can’t tell one from the other, the symptoms are so similar. Brain fog (cog-fog) fatigue, issues with heat and cold, depression,(I take an antidepressant every day. What I go through just to remember to take my pills!

  • CathyD moderator
    3 years ago

    Hi jennyb,

    I’m sorry to read that you’re dealing with both MS and PsA. That must be very challenging. Thank you so much for sharing your experiences with us. If you are interested, we have a site for MS: https://multiplesclerosis.net/ Please feel welcome at either site anytime. We are all here for you.

    Best,
    CathyD (Psoriatic-Arthritis.com team)

  • Koffegurl
    3 years ago

    Never being able to get/stay warm. I use an electric blanket year round. Also, having to do most things 2 handed, such as turning doorknobs, opening and closing things like bottles and jars, lifting a cup or glass to your mouth. Not to mention trying to b unook a bra, buttoning or unbtutoring anything. Tying shoelaces is pretty much impossible. Waking up with clawed, painful, swollen hands and fingers is a daily reality. Typos are a nightmare. teality

  • Rebecca moderator
    3 years ago

    Ahhhh electric blankets….I have one at my desk! I keep seeing weighted blanket ads on facebook – have you seen them? I’m intrigued!

  • CathyD moderator
    3 years ago

    Bless you, Koffegurl, the hands are so difficult to deal with. I’m sorry you are suffering with this. Please know that we are here for you.

    – CathyD (Psoriatic-Arthritis.com team)

    P.s. my electric blanket is my best friend!!

  • PattyJ
    3 years ago

    Brain fog. Being an accounting clerk, I found myself unable to do simple math in my head sometimes. It sure makes mutl-tasking much more difficult. I kept a notepad by the phone to jot down info until I could make a permanent record or a note about what I was doing as I got interrupted to keep it all straight. Sometimes I felt like I was spaced out on Benadryl or something stronger.

    If I get chilled, especially after shoveling snow, I may have to go get in my heated waterbed for at least half an hour to get warm. I don’t notice it until I get back inside and my outer thighs will be cold to the touch. Nothing else seems to work.

    Life gets tough when you can'[t touch your fingers to your thumb for 4 months at a time and it takes two hands to turn the key in the ignition or shift gears. Simple things like opening and closing ziplock bags, beverages, and jars are a major feat. With the wrong combo of joints inflamed even wiping your own rear end or getting dressed is a challenge. Just picking up a large glass of tea is a two handed operation. Thank God, I am much improved from those days.

    I do wonder how much of my significant hair loss is due to the psoriasis which began before I was taking any medications that could have caused it.

    Thanks for asking. I have learned a lot since I joined this site and I’ve had it for 38 years.

  • melissagallo
    1 year ago

    The brain fog is horrible! I have so many things I have started to do and can’t seem to get back to….. I lose focus and forget what I’m doing so easily! No one believes me when I talk about this! How can I help them understand this is a real thing?

  • CathyD moderator
    3 years ago

    Hi PattyJ!

    Oh my goodness, the brain fog struggle is so real. Before I knew it was called brain fog I used to say that it felt like my head was full of cotton wool… Actually, I still say that sometimes!

    I found this article from our sister site, https://plaquepsoriasis.com/, on hair loss and psoriasis: https://plaquepsoriasis.com/symptoms-affect-body/hair-loss-scalp-flaking/ I hope this is helpful.

    Thank you so much for being here and sharing with us 🙂

    – CathyD (Psoriatic-Arthritis.com team)

  • AprilAnn
    3 years ago

    Loss of coordination.

  • Casey moderator
    3 years ago

    Thanks for sharing with us, AprilAnn! How strange! Please continue to keep us updated, we’re here for you! Best, Casey (Psoriatic-Arthritis.com Team)

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