Ask the Patient Leaders: Why We Share Our PsA Stories
Last updated: June 2023
On paper, it would make sense for a chronic pain story to begin with a diagnosis and go from there. For those with psoriatic arthritis (PsA), that’s not the case. A diagnosis validates where it actually started – unexplained pain.
PsA presents in different ways, and no painful journey is the same. This unique chronic condition is unpredictable and difficult to explain. This PsA Awareness Month, our intention is to promote a better understanding of PsA with the ultimate goals of erasing stigma and prioritizing treatment research.
Pretty lofty goals, huh? Well, similar to a journey with chronic illness, we have to begin somewhere.
Why it’s important to share your PsA story
This community is supported by individuals who live with psoriatic disease, all at the direction and involvement of our dedicated Patient Leaders. Those Patient Leaders want you to know that sharing your story is important and can make all the difference when it comes to raising awareness for this unique and debilitating condition.
If you are hesitant about sharing your story, we encourage you to please take the time to watch the video below. You just might change your mind.
This website is full of articles, stories, and questions focused on the uniqueness of psoriatic arthritis – and we would be honored to have yours.
Join us in raising awareness for PsA
We’re hopeful that the words of Cynthia, Jaime, Vickie, and Porscha resonated with you on some level. This condition can consume so much of our lives, and the opportunity to raise awareness can allow us to take back control, find support, and ultimately feel seen as a person, not just a condition.
There are plenty of opportunities to get involved in ways that can work for you.
We’re so grateful that you’re here, wherever you are in your PsA journey and in whatever capacity you want to get involved. Thank you for helping us achieve our goal of raising awareness of PsA and the overall impact it has on those who live with it.
This or That
Do you experience enthesitis alongside your PsA?
Do you have any questions about PsA?