Ask the Patient Leaders: Tips to Start Sharing PsA Stories
Last updated: May 2023
Managing life with psoriatic arthritis (PsA) comes with lots of lessons, experiences and chapters. Of course, it’s important to remember that our lives are so much more than our condition but when it feels like PsA may be consuming too much - it’s a good practice to put pen to paper, or bring thoughts to the keyboard.
It doesn't have to be much, especially when it all feels like too much. If you're ready to share a unique story and unsure how to organize it, consider the 3 P's. It starts with unloading all the information or "puking" out a related experience, then onto "planning" and outlining your shared story and finally, come close to "perfecting" by making any last minutes changes or details.
Find the courage to tell your PsA story
Sharing your experience gets it out of your head and into the universe. Of course, it’s hard to get out of our own head sometimes.
If you’re not sure where to start, you’ve come to the right place. Our own patient leaders, Cynthia, Jaime, Vickie and Porscha offer words of wisdom and gentle encouragement as you yourself find the courage to begin telling your own unique PsA story.
You might be thinking “Does my PsA story even matter?” We’re here to tell you, it does. Your experiences and the impact this condition has on your life, big or small, is real and deserves to be validated and heard.
Our community of connection could use your story...
Here at Psoriatic-Arthritis.com, we offer a safe community full of support and connection. We see it happen daily - where those who are affected with this condition feel seen in the stories and experiences of others. We’re confident that your involvement and your story can provide that validation too.
- Have a story to share? Our community is itching to hear it (pun intended).
- Have a question you’d like to ask about PsA? Our forums are ready for you.
- Still a bit overwhelmed? Sign up for our curated newsletter on all things PsA.
However you like to get involved, we’re happy you’re here. Thank you for helping us achieve our goals of raising PsA awareness and the overall impact it has on those who live with it.
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