Ask the Patient Leaders: The Overlooked Aspects of PsA
Last updated: May 2023
You may be familiar with the term “invisible illness.” It’s a common term used to describe chronic conditions that are not outwardly visible to family, friends, partners, and even healthcare professionals. Psoriatic arthritis (PsA) can most certainly be described as an invisible illness.
Too often, PsA is compared to rheumatoid arthritis or osteoarthritis. In fact, PsA is a unique condition with a lot of unique symptoms. When others dismiss its invisible impact, it stings.
You may find yourself feeling unseen, defensive of your unique symptoms, and faced with chronic pain adversity. All of this comes on top of managing the condition itself.
Psoriatic arthritis patients share . . .
So, what can you do? You can make your mess your message. Our Patient Leaders are committed to doing just that. They want to amplify the unique challenges of managing life with PsA – especially the overlooked symptoms that classify PsA as an invisible illness.
You have been invalidated and unseen for far too long. In the video below, our Patient Leaders to describe the unique effects of psoriatic arthritis and the emotional impact of those overlooked symptoms.
This PsA Awareness Month and all year long, the intention of Psoriatic-Arthritis.com is to promote better understanding of PsA. Our goals are to erase stigma and prioritize treatment research. You are always welcome here, any day, at any comfort level.
You won’t be overlooked here
You are a person before a patient. And when it comes to managing life with PsA, your experience matters. Its value echoes through the words of Cynthia, Jaime, Vickie and Porscha.
- If you have a question about PsA, it may have been asked before. Check out our forums. If you can’t find what you’re looking for, we encourage you to ask the question there.
- Are you feeling inspired to share your unique experience with PsA? Want to vent about a particular interaction or frustration? Consider sharing your story.
- Prefer to just lurk and read about PsA? Our curated newsletter would be perfect for you. Sign up here.
Wherever you are in your PsA journey, we see you, we welcome you, and we thank you for being here.
This or That
Do you experience enthesitis alongside your PsA?
Has PsA changed how you think about sex and intimacy?
Join the conversation