I don’t know how many of you have experienced this but one of the more frustrating things I’ve been dealing with over the last year is a problem that no doctor seems to be able to help me with. And I have access to the world renowned Cleveland Clinic, so I’ve seen some of the best. Here’s my story.
A little more than a year ago I developed a array of symptoms that all appeared at the same time. Pain on the left side of my head, concentrated under my left eye. Pressure in the back of my head. Tinnitus in my left ear. Dizzy spells that would feel like a rush of adrenaline … that that feeling you get on that first big dip of a roller coaster. And a lump on the left side of my neck. At first I thought it was a sinus infection because the symptoms were very similar. But that wasn’t it. Then, of course, I was afraid it might be cancer because of the lump. But a CT scan of it showed the lump was benign. I’ve seen everyone from my family physician to ENTs to spinal specialists to neurologists … you name it. Every type of doctor under the sun .And a year later no one can tell me what this is.
I’m relatively certain it has to do with my PsA and anklosing spondylitis because it’s positional. The head pressure and ear ringing get louder if I sit or lay down in certain positions. That’s also when the adrenaline rush sensation tends to happen. But in this day and age of medicine to have doctors simply shrug their shoulders at me is frustrating. The last one told me, “Well the good news is, as far as I can tell, it’s nothing serious. The bad news is that I can’t tell you exactly what it is.”
So I’m stuck. With left-side head pain, pressure, tinnitus, occasional dizziness and a lump on my neck. And no one knows the cause. And that sucks. I’d give anything to find a doctor who could tell me what this was, even if there was no way to fix it. Because not knowing after a full year of trying to figure out what this is has gotten to be pretty stressful.
I’m trying to make peace with the fact that there may be no answer. But I struggle with that because that’s not me. I like science! I find comfort in facts. Not knowing is kind of a torture all of its own.