Are you using an assistive device or mobility aid?
What made you decide to get an assistive device or mobility aid? Or, if you aren't using one, what is holding you back?
I guess what is holding me back is the stigma of someone my age (30's) using a chair or other assistive device, which is silly because i worked for a medical supply company for the last 5 years (prior to this illness). I personally dont care what people think, but i have a daughter in a new elementary school that does care. And i cant blame her. School is tough when youre the new kid, and i dont want to make it any tougher on her. So i sacrifice on bad days and dont use any aids if i have to leave the house. But mostly, i try not to leave the house lol.
I have used a cane in the past, but to me it was more of a hinderance, than it was helpful. Working with asst. devices for the last 5 years has given me the knowledge of what to use when i do need something, but for now im getting along pretty good. its just easier for me not to use one. But when the time comes, im not afraid....plus my girl wont be the "new kid" for too much longer, so it may be sooner than later.Best of luck & STAY STRONG!!!
I have a hard time withh devices outside of home. I will use the store elect. buggies though. I feel guilty because I don't look ill. Just old. But I hate for someone to see my weaknesses. My husband is my device when I had R.A. But he was just diagnosed with PSA about 6 months ago And I was just diagnosed 1 month ago. I worry more about him because he has to work. He really has a hard time with his neck. Any device for that?
oh my heart goes out to both you and your husband. It can be hard to let other people see weakness, and the invisibility of living with RA and/or PsA can really be a challenge (as you mention feeling guilty since you don't "look" ill). I do want you to know that you're not alone. A lot of people here find it difficult to ask for help or be seen with a weakness and struggle with people's perceptions of what it means to "look ill". As far as a device for your husband's neck, can you clarify a bit? I'm not sure if you mean a device to hold his head in place (to keep the neck from moving) or something else? I am including this article about PsA and neck pain from our health leader, Cynthia, if you're interested, https://psoriatic-arthritis.com/living/neck-pain. And this article includes information one of our advocates wrote about neck and back pain and a road trip (sitting for long periods of time), https://psoriatic-arthritis.com/living/road-trip-pain. I do hope that can help give you some insights, but if not, please don't hesitate to reach out again. Wishing you and your husband gentle days. -- Warmly, Christine (Team Member)
I'm collecting mobility devices! Not that I want to. I've lost all my mobility due to PSA damage I guess, bowed legs, worn out or swollen stiff knees, bad feet issues. I have a special mobility chair from Denmark that looks like an office chair but it has a battery & can go up to reach things or countertop level to do some cooking or baking! I don't feel like I'm in a wheelchair & have lots more freedom to get around. My favorite is my mobility scooter so I can go outside & enjoy the fresh air & sunshine! I take it for rides all over my Idaho neighborhood! I have a platform lift that has been the biggest blessing, paid by my Blue Cross of Idaho Health Insurance. I can't do stairs, way too painful, so I can get out of my house! It's like having a personal open elevator instead of the stairs in my garage! It all started with using a cane when I was out! I'm really thankful I have them or I'd really be homebound & depressed! They give me a sense of freedom and I've had to adapt but I still get to do a few things I love like going for a walk or rather ride in my scooter! I believe God is watching over me & blessing me inspite of the overlapping health conditions that cause me so much chronic pain & struggle! Blessings to all of you with struggles like mine! PSA & osteoarthritis are very difficult to deal with every day even with Rinvoq or good meds!
Thanks so much for sharing,
! You bring up a good point. Viewing mobility devices as a benefit and a way to help people keep their independence and autonomy can make a big difference. It sounds like they've really made a huge difference for you, both physically and mentally, and I am just so happy to hear that! We really appreciate you sharing both your perspective and the devices that you've found helpful. Wishing you a gentle day. -- Warmly, Christine (Team Member)
I have to use a cane, it took a little bit to be okay with it, but I have to have the assistance upon standing and walking now.
I have been using a cane for months. I understand the way you are feeling about it. It took me time to be okay with it as well. I know I need the cane but it still weighed on my heavily for a while. Sending gentle hugs. Vickie W., Team Member
