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PsA and congress

brea1810's avatar image

By brea1810

Last Updated:

1 min read

Hey all- I wanted to share my recent journey on being an arthritis warrior. I was diagnosed In 2016 after having symptoms for over 6 years. I found the arthritis foundation and now this group.

  • I have PsA and I’m currently not being managed on a medication that helps. Needless to say we as warriors have a voice that has to be heard.
  • Last week I was honored to be able to attend LiveYes! Summit in DC where I spoke to several of our senators and pushed for more DOD research funding, joint the arthritis caucus which is bipartisan, reinstating the patient voice act, and also CDC medical research fund.
  • This was such an amazing experience. I was able to give my testimony as not only a patient but and advocate for those who think they don’t have a voice. I met with Brad Wenstrup who helped push for the “fail first” act into place. So it was my mission to allow these senators know that I am a patient but also work in healthcare and have to deal with step therapy for my patients.

    • Going to DC and speaking with congressional members was an honor. In case y'all don’t think that there is a voice out there...just know the past week I was able to advocate on your behalf. I have tons of more stories from the trip if anyone is interested. #endsteptherapy #warriors #congress #healthcareprofessional #advocateforarthritis #findacure #marchisautoimmunediseasemonth

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